#MEAction continues to prioritize getting ME in the press. We are very thankful to be featured in USA Today, North Jersey, New York Times, Infection Control Today, Times-Herald and Well+Good, all in the last few weeks! Our press reach continues to focus on multiple audiences, including scientists and medical practitioners,…
Would you like the opportunity to share your story about what it is like to live with M.E. through a photograph? Photographer and film maker, Jeremy Jeffs, is launching an inspirational… This post first appeared on Action for M.E. Read more >>
Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 3: “Energy System First Aid” for People With Post Exertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT, February 16, 2022 [https://doi.org/10.2519/jospt.blog.20220216] Blog post extract: In a previous post,…
In honor of Black History Month, #MEAction has gathered a collection of articles, videos, and groups that features Black members of our community. We are also sharing links to articles and videos that explore the importance of Black disability history. We invite you to celebrate and honor the contributions of…
Action for M.E. is hosting a webinar on M.E./CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome) for anyone working in social care or social work at 1:30 on Thursday 17th of… This post first appeared on Action for M.E. Read more >>
No Increase in Funding in Latest Plan for ME/CFS Collaborative Research Centers The National Institutes of Health (NIH) has announced their intent to extend the ME/CFS Collaborative Research Center (CRC) program, first launched in 2017, beyond its initial 5-year lifetime. They have issued a $7.1M annual funding opportunity for the…
For the first time ever, we’re dedicating an entire month to our annual advocacy event, and registration for congressional meetings is now open! Advocacy Month 2022 will take place virtually throughout the month of... This post appeared first on Solve ME/CFS Initiative. Read More
#MEAction has been a leader in the fight for health equity for people with Myalgic Encephalomyelitis for the past six years, as led by our visionary co-founder and first executive director, Jen Brea, and then by our current executive director, Julia Miele, over the past year. Julia has helped our…
Health Minister Eluned Morgan promises more help for people with Long COVID in Wales. Health Minister Eluned Morgan announced the findings of an independent review into Long COVID healthcare in Wales on 8th February 2022 and promised continued support. We want everyone with Long COVID to know that we haven’t…
This year, we are excited to announce that #MillionsMissing will be held in two parts: May and September! #MillionsMissing is about demonstrating our community’s collective refusal to let the stories of people with ME be erased, or access to healthcare and medical research blocked. We protest against all barriers to…