Newly Published Research Connects ME/CFS and Covid-19

Unique collaboration between Harvard, Johns Hopkins and citizen-scientist supported by Solve M.E. A comprehensive review of ME/CFS and Long Covid research published this week suggests that symptoms of both may be caused by redox imbalance, which is linked to inflammation and reduction of cellular energy production. [Redox imbalance occurs when…

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U.S. ME/CFS Clinician Coalition Releases Updated Clinical Guidance That Could Help Those with Long Covid

The U.S. ME/CFS Clinician Coalition recently released updated clinical guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which may also help individuals suffering from Long Covid symptoms. An article about the guidance was published in Mayo Clinic Proceedings, which is widely read by clinicians.  The updated clinical guidance from the U.S.…

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NICE announces ‘next steps’ for ME/CFS guideline!

NICE’s ‘next steps’ – a roundtable discussion in September NICE has finally announced what happens next – more talking – with no explanation of the rules and regulations that are governing this move or how the next revision can be more ‘evidence-based’ than the current one! Dear Stakeholder, NICE announces…

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Solve M.E.

Founding Member The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies,…

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Read more about the article AQEM – Association québécoise de l’encéphalomyélite myalgique
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AQEM – Association québécoise de l’encéphalomyélite myalgique

Founding Member Our mission is to promote awareness and recognition of myalgic encephalomyelitis (a disease also known as chronic fatigue syndrome), to help those affected and to help promote research. AQEM is a group of volunteers united around a common project, through which each of our personal victories is added…

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#MEAction

Founding Member #MEAction is an international network of patients fighting for health equality for ME by building community and mobilizing patients, families, and allies. We were founded with the belief that while we may find it difficult to advocate for ourselves in the physical world, by making our activism accessible,…

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WAMES – Welsh Association of ME & CFS Support

Founding Member Working for ME in Wales Our vision is for a Wales where adults and children with ME, CFS and PVFS and their carers are taken seriously and treated with respect, where diagnosis, treatment and services are accessible without a battle. The Welsh Association of ME & CFS Support…

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ACAF

Founding Member ACAF (Associació Catalana d'Afectades i Afectats de Fibromiàlgia i d'altres Síndromes de Sensibilització Central) is a mutual help association formed by people affected by Central Sensitization Syndromes (CFS/ME - FM - MCS - EHS) where we can communicate and help each other, with the aim of learning to…

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Plataforma Familiars FM-SFC-SQM Síndromes de Sensibilització Central

Founding Member We want to help society visualize, understand and comprehend the real situation of affected patients. However, relatives also suffer. They often find themselves alone in the face of the illness of the people they love. We would like to help alleviate this feeling of loneliness. It is common…

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Forward M.E.

Founding Member The ME community in the UK is served by a considerable range of charities, with even the largest being relatively small. Recognising the benefit of being able to speak with a louder voice, Forward-ME was established as a coordinating body to provide a unified and perhaps louder voice…

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