Last week, the National Institute of Health and Care Excellence (NICE) announced that, following the pause to the publication of it guideline on diagnosing and managing M.E./CFS, it… This post first appeared on Action for M.E. Read more >>
Professor Chris Ponting is Chair of Medical Bioinformatics at Edinburgh University and a Principal Investigator at the MRC Human Genetics … News and Research – American ME and CFS Society Read More
An audit of UK hospital doctors’ knowledge and experience of Myalgic Encephalomyelitis, by Keng Ngee Hng, Keith Geraghty and Derek FH Pheby in Medicina 2021, 57(9), 885; [doi.org/10.3390/medicina57090885] 27 August 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical Features and Diagnosis) Research abstract:Background and Objectives:There is some evidence…
WAMES writes to NICE re ‘Roundtable event’ On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders to a roundtable discussion in September ‘to better understand the issues…
Unique collaboration between Harvard, Johns Hopkins and citizen-scientist supported by Solve M.E. A comprehensive review of ME/CFS and Long Covid research published this week suggests that symptoms of both may be caused by redox imbalance, which is linked to inflammation and reduction of cellular energy production. [Redox imbalance occurs when…
The U.S. ME/CFS Clinician Coalition recently released updated clinical guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), which may also help individuals suffering from Long Covid symptoms. An article about the guidance was published in Mayo Clinic Proceedings, which is widely read by clinicians. The updated clinical guidance from the U.S.…
NICE’s ‘next steps’ – a roundtable discussion in September NICE has finally announced what happens next – more talking – with no explanation of the rules and regulations that are governing this move or how the next revision can be more ‘evidence-based’ than the current one! Dear Stakeholder, NICE announces…
Founding Member The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies,…
Founding Member Our mission is to promote awareness and recognition of myalgic encephalomyelitis (a disease also known as chronic fatigue syndrome), to help those affected and to help promote research. AQEM is a group of volunteers united around a common project, through which each of our personal victories is added…
Founding Member #MEAction is an international network of patients fighting for health equality for ME by building community and mobilizing patients, families, and allies. We were founded with the belief that while we may find it difficult to advocate for ourselves in the physical world, by making our activism accessible,…