ME/CFS IN EARLY TV DISCOURSE: QUESTIONING GOVERNMENTAL POLICIES AND CHALLENGING THE CONCEPTIONS OF DISEASE AND MEDICINE by Giada Da Ros As patients who suffer from it well know, myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a life-altering, debilitating, chronic, systemic disease that frequently and dramatically limits the activities of…
Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding…
January 21, 2022 In September 2021 we announced our decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders of both charities.… This post first appeared on action for M.E. Read more >>
January 20, 2022 We were honoured to see Scottish actor Mark Bonnar appear on ITV’s popular game show Celebrity Catchphrase playing for Action for M.E last weekend. Mark is known for his roles as Max… This post first appeared on Action for M.E. Read more >>
#MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular…
What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms. It’s no exaggeration to say that 2020 and 2021 changed the world –…
As we enter the holidays we have a positive development to report coming out of yesterday’s ME/CFS stakeholder call with the U.S. Centers for Disease Control and Prevention (CDC). CDC has announced that it will not publish a systematic evidence review of ME/CFS treatments by the Oregon Health Science University…
December 17, 2021 Over the past few weeks, we have been collecting design entries for our Christmas e-card competition. We are delighted to announce that Jen was voted the winner for the competition,… This post first appeared on Action for M.E. Read more >>
Through three stages of participation, this process is aiming to define the top ten research priorities for people affected by this disease. The process now has just one more step – and you could be part of it. These …This post appeared first on #MEAction Network. Read More
December 16, 2021 Over 2,000 people with M.E./CFS, carers and health professionals in the UK engaged with the recent survey from the M.E./CFS Priority Setting Partnership. Through three stages of participation,… Read more >>