Despite the devastating impact of M.E., understanding of the disease is still woeful. While at least 250,000 people live with M.E., and even more experiencing overlapping symptoms with… This post appeared first on Action for M.E. Read more >>
Welcome to our second Facets of ME! This is an educational feature in which we choose one aspect of ME to dive into and explore more in-depth once a month. Our goal is to keep it understandable while still providing a great overview and links to even more detailed information. …
“THAT’S WHY THEY DON’T BELIEVE YOU, YOU DON’T LOOK SICK!”: FICTIONAL REPRESENTATIONS OF ME/CFS by Giada Da Ros Sociologists emphasize the importance of social and cultural representation of social and cultural representation of chronic and emerging disease, both for individual and collective behavior. “(T)he fact that people are able to…
Funded by BBC Children in Need, our Breaking Isolation project - which began in 2020 - brings together a steering group to design and deliver a series of isolation-busting workshops… This post appeared first on Action for M.E. Read more >>
“Madeline” is a woman who has been suffering with a post viral syndrome for 40 years which includes Severe Myalgic Encephalomyelitis (ME) and fibromyalgia. Madeline lives in British Columbia, Canada and she urgently needs your help. There is a need to seek alternative medical treatments due to the lack of…
You are invited to join us for a Self-Advocacy workshop online via Zoom live on Friday 18th March 2022 12:30 pm-2:30 pm hosted by our team of Advocacy officers. The workshops will centre around 'Accessing social care in England'. We welcome people with M.E. or those affected by M.E., whether…
#MEAction continues to prioritize getting ME in the press. We are very thankful to be featured in USA Today, North Jersey, New York Times, Infection Control Today, Times-Herald and Well+Good, all in the last few weeks! Our press reach continues to focus on multiple audiences, including scientists and medical practitioners,…
Would you like the opportunity to share your story about what it is like to live with M.E. through a photograph? Photographer and film maker, Jeremy Jeffs, is launching an inspirational… This post first appeared on Action for M.E. Read more >>
In honor of Black History Month, #MEAction has gathered a collection of articles, videos, and groups that features Black members of our community. We are also sharing links to articles and videos that explore the importance of Black disability history. We invite you to celebrate and honor the contributions of…
Action for M.E. is hosting a webinar on M.E./CFS (Myalgic Encephalomyelitis or Chronic Fatigue Syndrome) for anyone working in social care or social work at 1:30 on Thursday 17th of… This post first appeared on Action for M.E. Read more >>