NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development. What…
A landmark study published in Science found Epstein-Barr virus (EBV) as the leading cause of Multiple Sclerosis (MS). Given the already-established connection between EBV and ME/CFS, this study may have... This post appeared first on Solve ME/CFS Initiative. Read More
As you know, Adriane Tillman, has been working extremely hard, alongside her team of volunteers to get featured in the press and she has tapped into a new audience with her latest press hit in Infection Control Today’s article, “Long COVID Shouldn’t Have Taken Us by Surprise”, by Frank Diamond.…
ME/CFS IN EARLY TV DISCOURSE: QUESTIONING GOVERNMENTAL POLICIES AND CHALLENGING THE CONCEPTIONS OF DISEASE AND MEDICINE by Giada Da Ros As patients who suffer from it well know, myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a life-altering, debilitating, chronic, systemic disease that frequently and dramatically limits the activities of…
Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding…
#MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular…
What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms. It’s no exaggeration to say that 2020 and 2021 changed the world –…
Last year was, by all accounts, a doozy. The nation endured a spate of tornadoes, fires, floods and, of course… News and Research – American ME and CFS Society Read More
In survey, 19% of people with ME/CFS said health worsened after vaccination compared to 4% reported by controls. A recent survey conducted by our You + ME Registry found that the health... This post first appeared on Solve M.E. Read More
Dear friend, With an onslaught of Covid-19 cases from the Omicron variant looming, identifying treatments for Long Covid has become even more imperative. Since the beginning of the pandemic,... This post appeared first on Solve ME. Read More