Solve M.E. supports research into the underlying causes of ME/CFS and Long Covid through the Ramsay Research Grant Program, an open, peer-reviewed competition for grants to support pilot studies and data analysis. The Ramsay Program has been successful in attracting new scientists to the field of ME/CFS, providing much-needed funding…
Taking BOLD ACTION with our press outreach has led to national media writing about ME. Nothing says BOLD ACTION like our press work. We are working daily to cultivate relationships with journalists and educate the press about ME, and we are seeing immense results. In the past few weeks alone,…
#MillionsMissing France has been busy. This month, in tandem with Adapted Physical Activity Expert Gilles Thöni, the association addressed the French National Authority for Health (HAS) requesting, as they have since 2020, that the HAS focus of aspects of their diagnostics policy on Post-Exertional Malaise (PEM), a hallmark symptom for…
Last week, two standout members of our community — Dr. Peter Rowe and Cynthia Adinig — participated in a satellite media tour (SMT) with 27 different TV and radio stations broadcasting to local audiences all over the United States. To date, the interviews have aired to an audience of nearly…
Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records... The post New Diagnostic Codes for ME/CFS in the US ICD-10-CM appeared first on #MEAction Network. Read More >>
On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made…
Solve M.E. VP of Advocacy Emily Taylor at #MillionsMissing in Washington, D.C. Solve M.E. Vice President of Advocacy and Engagement Emily Taylor recently attended the #MillionsMissing protest in Washington D.C... The post Long Covid and ME/CFS Communities Gather at Capitol Protest appeared first on Solve ME/CFS Initiative. Read More >>
People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice.…
Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues. We provided feedback on…
Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where we take time to explore one facet or aspect of myalgic encephalomyelitis (ME/CFS). Sometimes it is a symptom and sometimes it is a unique aspect many of us face living with…