Guest Blog: That Thing Called Pacing, by Ingebjørg Midsem Dahl

Ingebjørg Midsem Dahl was born in 1979 in Oslo, Norway, where she still lives. She came down with ME acutely in 1983. Ingebjørg has done written information work for major... The post Guest Blog: That Thing Called Pacing, by Ingebjørg Midsem Dahl appeared first on Solve ME/CFS Initiative. Read More…

Continue ReadingGuest Blog: That Thing Called Pacing, by Ingebjørg Midsem Dahl

First You + ME Registry Publication Is Available Online Now!

It’s been more than two years since we launched the You + ME Registry and we’re thrilled to have over 6,500 people contributing data to the community. We also have... The post First You + ME Registry Publication Is Available Online Now! appeared first on Solve ME/CFS Initiative. Read More…

Continue ReadingFirst You + ME Registry Publication Is Available Online Now!

Solve M.E. Spearheads the First Nationwide Long Covid PSA campaign

We are excited to announce a new program being introduced by Solve M.E. and invite our community play an important part in its roll out. Solve M.E. is on the verge of launching the first of its kind national TV and Radio Public Service Announcement (PSA) campaign about Long Covid…

Continue ReadingSolve M.E. Spearheads the First Nationwide Long Covid PSA campaign

Severe ME Artist Project 2022 — Gallery

A collection of works by artists with severe ME. #MEAction is excited to announce our Severe ME Artist Project 2022— Gallery! The Severe ME Artist Project 2022 features work from those within the severe ME community and is in recognition of Severe ME Day on August 8th. We had a…

Continue ReadingSevere ME Artist Project 2022 — Gallery

CureME’s Caroline Kingdon on Representing People with Severe ME in Research

Caroline Kingdon, RN, MSc, is a research nurse for CureME, an organization at the forefront of participatory epidemiological, clinical and laboratory research into ME/CFS in the UK. She is also... The post CureME’s Caroline Kingdon on Representing People with Severe ME in Research appeared first on Solve ME/CFS Initiative. Read…

Continue ReadingCureME’s Caroline Kingdon on Representing People with Severe ME in Research

Join Us This August 8th to Honor Individuals with Severe ME/CFS

Each year on August 8, Severe M.E. Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of... The post Join Us This August 8th to Honor Individuals with Severe ME/CFS appeared first on Solve ME/CFS Initiative. Read…

Continue ReadingJoin Us This August 8th to Honor Individuals with Severe ME/CFS

Just In Time for the School Year: A New Pediatric Pacing Guide

#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join us in developing the Pacing and Management Guide for Pediatric ME/CFS and Long COVID.  Our Pacing and Management Guide has…

Continue ReadingJust In Time for the School Year: A New Pediatric Pacing Guide

Solve M.E. Welcomes Chief Operating Officer TaKeisha S. Walker

Solve M.E. is pleased to announce that TaKeisha S. Walker recently joined us as chief operating officer. In this newly-created role reporting to CEO Oved Amitay, TaKeisha will lead Solve’s communications, finance, and development strategies and manage cross functional... This appeared first on Solve ME/CFS Initiative. Read More

Continue ReadingSolve M.E. Welcomes Chief Operating Officer TaKeisha S. Walker

An update on the Scottish implementation of the NICE guideline

As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a Scottish stakeholder review, carried out externally by consultant Blake Stevenson.  The report on the review was published in July and…

Continue ReadingAn update on the Scottish implementation of the NICE guideline

Solve M.E. Board Member Testifies at Congressional Hearing

House Holds Hearing on “Understanding and Addressing Long Covid”  This week, the Select Subcommittee on the Coronavirus Crisis held a hearing on understanding and addressing Long Covid and its consequences. The panel featured perspectives from patient, public health, employment, and research experts who testified to the impacts of Long Covid,…

Continue ReadingSolve M.E. Board Member Testifies at Congressional Hearing