In April, President Biden issued a Presidential Memorandum directing the Secretary of Health and Human Services (HHS) to coordinate a new effort across the federal government to develop and issue... The post Solve M.E. Advises and Reacts to Administration Reports on Long Covid appeared first on Solve ME/CFS Initiative. Read…
The electronic version of our flagship research and advocacy journal, The Chronicle, has arrived! It includes a celebration of our Long Haul Voices: Living with Long Covid and ME/CFS video... The post The Summer 2022 Edition of The Chronicle is Available Online Now! appeared first on Solve ME/CFS Initiative. Read…
On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid, announced the Government’s intention to develop a cross-Government Delivery Plan on ME/CFS for England. This intention was published in a Written Ministerial Statement laid in Parliament. Development of the plan will…
Ingebjørg Midsem Dahl was born in 1979 in Oslo, Norway, where she still lives. She came down with ME acutely in 1983. Ingebjørg has done written information work for major... The post Guest Blog: That Thing Called Pacing, by Ingebjørg Midsem Dahl appeared first on Solve ME/CFS Initiative. Read More…
It’s been more than two years since we launched the You + ME Registry and we’re thrilled to have over 6,500 people contributing data to the community. We also have... The post First You + ME Registry Publication Is Available Online Now! appeared first on Solve ME/CFS Initiative. Read More…
We are excited to announce a new program being introduced by Solve M.E. and invite our community play an important part in its roll out. Solve M.E. is on the verge of launching the first of its kind national TV and Radio Public Service Announcement (PSA) campaign about Long Covid…
A collection of works by artists with severe ME. #MEAction is excited to announce our Severe ME Artist Project 2022— Gallery! The Severe ME Artist Project 2022 features work from those within the severe ME community and is in recognition of Severe ME Day on August 8th. We had a…
Caroline Kingdon, RN, MSc, is a research nurse for CureME, an organization at the forefront of participatory epidemiological, clinical and laboratory research into ME/CFS in the UK. She is also... The post CureME’s Caroline Kingdon on Representing People with Severe ME in Research appeared first on Solve ME/CFS Initiative. Read…
Each year on August 8, Severe M.E. Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of... The post Join Us This August 8th to Honor Individuals with Severe ME/CFS appeared first on Solve ME/CFS Initiative. Read…
#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join us in developing the Pacing and Management Guide for Pediatric ME/CFS and Long COVID. Our Pacing and Management Guide has…