Dept. of Labor hosts dialogue on Long COVID in the workplace

The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to…

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#DisabilityPrideMonth: Listen to The Century Foundation’s podcast Off-Kilter

As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction board member Ryan Prior is a guest on the two-part Off-Kilter ADA 2022 Special that dives “into the picture for…

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New #MEAction Volunteer Survey

#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The…

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Guest Feature from Fiona Lowenstein: Chronic Illness Communities on Vaccines

The following essay is a guest feature from our friend, journalist Fiona Lowenstein. Fiona is the founder of Body Politic, a grassroots health justice organization for individuals with Long Covid. In... The post Guest Feature from Fiona Lowenstein: Chronic Illness Communities on Vaccines appeared first on Solve ME/CFS Initiative. Read More

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EmPOWER M.E.: Local & State Advocacy

Each year during Advocacy Month, we host our hallmark EmPOWER M.E. roundtable, during which patient advocates, professionals, and scientists share their expertise on topics relevant to the quality of life... The post EmPOWER M.E.: Local & State Advocacy appeared first on Solve ME/CFS Initiative. Read More

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More Federal Commitment to ME/CFS & Long Covid Research

House Appropriations Committee Includes Specific ME/CFS & Long Covid Funding Callouts. This week, the House Appropriations Committee released its report accompanying the fiscal year 2023 Labor, Health and Human Services... The post More Federal Commitment to ME/CFS & Long Covid Research appeared first on Solve ME/CFS Initiative. Read More

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#MEAction Recognizes & Celebrates Pride Month 2022!

#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are…

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Top 10 ME/CFS Recommendations for the Long COVID National Research Action Plan US

#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response…

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CDMRP Program at Department of Defense Announces $1.6M Grant for ME/CFS Research

At Solve M.E., our advocacy team is dedicated to opening new funding avenues for ME/CFS, Long Covid, and post-infection disease research and care. We’re excited to share that our efforts... The post CDMRP Program at Department of Defense Announces $1.6M Grant for ME/CFS Research appeared first on Solve ME/CFS Initiative.…

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