Caroline Kingdon, RN, MSc, is a research nurse for CureME, an organization at the forefront of participatory epidemiological, clinical and laboratory research into ME/CFS in the UK. She is also... The post CureME’s Caroline Kingdon on Representing People with Severe ME in Research appeared first on Solve ME/CFS Initiative. Read…
Each year on August 8, Severe M.E. Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of... The post Join Us This August 8th to Honor Individuals with Severe ME/CFS appeared first on Solve ME/CFS Initiative. Read…
#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join us in developing the Pacing and Management Guide for Pediatric ME/CFS and Long COVID. Our Pacing and Management Guide has…
Solve M.E. is pleased to announce that TaKeisha S. Walker recently joined us as chief operating officer. In this newly-created role reporting to CEO Oved Amitay, TaKeisha will lead Solve’s communications, finance, and development strategies and manage cross functional... This appeared first on Solve ME/CFS Initiative. Read More
As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a Scottish stakeholder review, carried out externally by consultant Blake Stevenson. The report on the review was published in July and…
House Holds Hearing on “Understanding and Addressing Long Covid” This week, the Select Subcommittee on the Coronavirus Crisis held a hearing on understanding and addressing Long Covid and its consequences. The panel featured perspectives from patient, public health, employment, and research experts who testified to the impacts of Long Covid,…
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to…
As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction board member Ryan Prior is a guest on the two-part Off-Kilter ADA 2022 Special that dives “into the picture for…
#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The…
The following essay is a guest feature from our friend, journalist Fiona Lowenstein. Fiona is the founder of Body Politic, a grassroots health justice organization for individuals with Long Covid. In... The post Guest Feature from Fiona Lowenstein: Chronic Illness Communities on Vaccines appeared first on Solve ME/CFS Initiative. Read More