On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made…
Solve M.E. VP of Advocacy Emily Taylor at #MillionsMissing in Washington, D.C. Solve M.E. Vice President of Advocacy and Engagement Emily Taylor recently attended the #MillionsMissing protest in Washington D.C... The post Long Covid and ME/CFS Communities Gather at Capitol Protest appeared first on Solve ME/CFS Initiative. Read More >>
People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice.…
Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues. We provided feedback on…
Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where we take time to explore one facet or aspect of myalgic encephalomyelitis (ME/CFS). Sometimes it is a symptom and sometimes it is a unique aspect many of us face living with…
In April, President Biden issued a Presidential Memorandum directing the Secretary of Health and Human Services (HHS) to coordinate a new effort across the federal government to develop and issue... The post Solve M.E. Advises and Reacts to Administration Reports on Long Covid appeared first on Solve ME/CFS Initiative. Read…
The electronic version of our flagship research and advocacy journal, The Chronicle, has arrived! It includes a celebration of our Long Haul Voices: Living with Long Covid and ME/CFS video... The post The Summer 2022 Edition of The Chronicle is Available Online Now! appeared first on Solve ME/CFS Initiative. Read…
On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid, announced the Government’s intention to develop a cross-Government Delivery Plan on ME/CFS for England. This intention was published in a Written Ministerial Statement laid in Parliament. Development of the plan will…
Ingebjørg Midsem Dahl was born in 1979 in Oslo, Norway, where she still lives. She came down with ME acutely in 1983. Ingebjørg has done written information work for major... The post Guest Blog: That Thing Called Pacing, by Ingebjørg Midsem Dahl appeared first on Solve ME/CFS Initiative. Read More…
It’s been more than two years since we launched the You + ME Registry and we’re thrilled to have over 6,500 people contributing data to the community. We also have... The post First You + ME Registry Publication Is Available Online Now! appeared first on Solve ME/CFS Initiative. Read More…