ME services in Wales can learn from Long COVID Adferiad programme says Health Minister

Welsh Government wants Long COVID community model to also treat and support ME, CFS and MS On 31st March 2022 the Health Minister Eluned Morgan announced further funding for the Adferiad programme for Long COVID recovery: “today I am announcing a further £5 million of Adferiad programme funding to be…

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Sunflower lanyards for invisible disabilities

What is the Sunflower? The Sunflower is a globally recognised symbol for non-visible disabilities, also known as hidden disabilities or invisible disabilities. People living with these often face barriers... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More

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Welsh Neuro Support Groups in March 2022

Neuro Support Groups – #LlaisNiwro Join these Wales Neurological Alliance zoom groups during March to meet others living with and supporting neurological conditions. The group meeting times with links to the Facebook groups are as follows... News | WAMES (Working for ME in Wales) | Welsh Association of ME &…

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Lessons from ME/CFS for long COVID: “Energy System First Aid” for people with PESE (aka PEM)

Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID Part 3: “Energy System First Aid” for People With Post Exertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT, February 16, 2022 [https://doi.org/10.2519/jospt.blog.20220216] Blog post extract: In a previous post,…

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Wales prioritises healthcare for post-viral condition Long COVID

Health Minister Eluned Morgan promises more help for people with Long COVID in Wales. Health Minister Eluned Morgan announced the findings of an independent review into Long COVID healthcare in Wales on 8th February 2022 and promised continued support. We want everyone with Long COVID to know that we haven’t…

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Petition: Fund research into any relationship between microclots & long Covid & ME

Petition: Fund research into any relationship between microclots & long Covid & ME A private petition to the UK Government highlights apparent similarities between long COVID and ME/CFS, and  requests research, not just support, into diagnosis, treatment and protocols for both conditions... News | WAMES (Working for ME in Wales)…

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Llais Niwro/Neuro Voices Project – join a support group

Neuro Voices Wales – Support Groups The Wales Neurological Alliance invites anyone with a neurological condition, including ME & FM, to attend one of the new neuro support groups... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More

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ME/CFS research priorities – take part in PSP final selection workshops

ME/Research priority workshops The ME/CFS Priority Setting Partnership (PSP) is holding 3 final workshops to decide the top 10 ME/CFS research priorities. Apply to take part by January 11 2022. When and where? The workshops will take place on Zoom: Saturday 5th March 1.00pm – 2.30pmThursday 10th March 5.30pm -7.00pmFriday…

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