As a founding member of the International Alliance for ME, WAMES is excited to be part of the development and launch of the World ME Alliance. The Alliance is the only organisation in the world to bring together national ME/CFS organisations to advocate for better recognition and treatments for Myalgic…

NICE ME/CFS guideline publication delay drags on… Another delay in the revision process to the ME/CFS guideline was announced on 10th September: Updated: 10th September, to change the month of the meeting from September to October. A NICE spokesperson said: “In order for the meeting to be as effective as possible it…

The ME community responds to NICE ‘Roundtable’ announcement NICE made an announcement about ‘next steps’ following the ‘pause’ in publication– a roundtable discussion between stakeholders in September. WAMES responded by writing to NICE expressing our commitment to the publication of the ME/CFS guideline, our willingness to join the Roundtable &…

‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, by Catherine Clark, Sue Holttum in Health Expectations 2021 [DOI: 10.1111/h ex.13326] Research abstract:ObjectivesThis study aimed to explore the experience of cognitive behavioural therapy (CBT) aimed at better management of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), rather…

WAMES writes to NICE re ‘Roundtable event’ On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders to a roundtable discussion in September ‘to better understand the issues…

NICE’s ‘next steps’ – a roundtable discussion in September NICE has finally announced what happens next – more talking – with no explanation of the rules and regulations that are governing this move or how the next revision can be more ‘evidence-based’ than the current one! Dear Stakeholder, NICE announces…