ME Support (IOM) joins the World ME Alliance

Sometimes being in a small place can enable a level of advocacy and engagement in political landscapes that is harder in large countries. This is absolutely the case for the Isle of Man, where the charity ME Support (IOM) has made major strides in improving the support available for people…

Continue ReadingME Support (IOM) joins the World ME Alliance

How Dept. of Labor can better track disability from chronic illness

Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues.  We provided feedback on…

Continue ReadingHow Dept. of Labor can better track disability from chronic illness

Social Prescribing – Welsh Government consultation

What is a suitable model for social prescribing in Wales?   The Welsh Government want to develop a national framework for social prescribing and is asking Welsh residents to comment.   What is social prescribing?  Connecting people to community based support The Welsh Government wants to make sure you get…

Continue ReadingSocial Prescribing – Welsh Government consultation

IACFSME conference videos & reports 2022

IACFS/ME’s 15th Medical/ Scientific Conference 27-30 July 2022   If you missed out on this large conference organised by the The International Association for CFS/ME (IACFS/ME) you can now watch the video recordings of the lectures or read some of the many written reports... News | WAMES (Working for ME…

Continue ReadingIACFSME conference videos & reports 2022

ME/CVS Stichting Nederland joins the World ME Alliance

This month, ME/CVS Stichting Nederland joined the World ME Alliance as a member. This Dutch organisation has been advocating for people with ME since 1987, and has a variety of focuses as they work to empower and improve the position of people with ME in the Netherlands. Their core focuses…

Continue ReadingME/CVS Stichting Nederland joins the World ME Alliance

Solve M.E. Advises and Reacts to Administration Reports on Long Covid

In April, President Biden issued a Presidential Memorandum directing the Secretary of Health and Human Services (HHS) to coordinate a new effort across the federal government to develop and issue... The post Solve M.E. Advises and Reacts to Administration Reports on Long Covid appeared first on Solve ME/CFS Initiative. Read…

Continue ReadingSolve M.E. Advises and Reacts to Administration Reports on Long Covid

The Summer 2022 Edition of The Chronicle is Available Online Now!

The electronic version of our flagship research and advocacy journal, The Chronicle, has arrived! It includes a celebration of our Long Haul Voices: Living with Long Covid and ME/CFS video... The post The Summer 2022 Edition of The Chronicle is Available Online Now! appeared first on Solve ME/CFS Initiative. Read…

Continue ReadingThe Summer 2022 Edition of The Chronicle is Available Online Now!

The DHSC have released details of their process in the Development of a Delivery Plan on ME

On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid, announced the Government’s intention to develop a cross-Government Delivery Plan on ME/CFS for England. This intention was published in a Written Ministerial Statement laid in Parliament.  Development of the plan will…

Continue ReadingThe DHSC have released details of their process in the Development of a Delivery Plan on ME

Delivery Plan on ME/CFS for England

DHSC Delivery Plan on ME/CFS development strategy   The Department for Health & Social Care (DHSC) in England has laid out the way they intend to develop the “cross-Government Delivery Plan on ME/CFS for England”, which their Health Secretary announced in May 2022. In a communication to stakeholders on 17th…

Continue ReadingDelivery Plan on ME/CFS for England