The following essay is a guest feature from our friend, journalist Fiona Lowenstein. Fiona is the founder of Body Politic, a grassroots health justice organization for individuals with Long Covid. In... The post Guest Feature from Fiona Lowenstein: Chronic Illness Communities on Vaccines appeared first on Solve ME/CFS Initiative. Read More
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who are able to attend clinics. It is estimated…
In December 2021, the Scottish Government commissioned Blake Stevenson Ltd to engage with stakeholders, including national charities, local support groups, health and social care clinicians, representatives from Royal Colleges and people with lived experience of ME/CFS, to gather their views on the NICE guideline on ME/CFS, which was updated in…
Last night news broke that the Secretary of State for Health and Social Care Sajid Javid had resigned from his role. This has left people with M.E. feeling concerned because Mr Javid... This post appeared first on Action for M.E. Read more >>
Each year during Advocacy Month, we host our hallmark EmPOWER M.E. roundtable, during which patient advocates, professionals, and scientists share their expertise on topics relevant to the quality of life... The post EmPOWER M.E.: Local & State Advocacy appeared first on Solve ME/CFS Initiative. Read More
House Appropriations Committee Includes Specific ME/CFS & Long Covid Funding Callouts. This week, the House Appropriations Committee released its report accompanying the fiscal year 2023 Labor, Health and Human Services... The post More Federal Commitment to ME/CFS & Long Covid Research appeared first on Solve ME/CFS Initiative. Read More
#MEAction recognizes and celebrates Pride Month! As a community that welcomes and encompasses all, this Pride Month, we asked members of our LGBTQIA+ community to share what Pride means to them and what they have learned from this movement that they bring with them to the ME movement. Here are…
#MEAction has been hard at work continuing to advocate to the Department of Health and Human Services (HHS) on behalf of people with ME and Long COVID since our last update in May. HHS has been directed by the White House to play a leading role in coordinating the response…
#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their…
You are invited to join us for a Self-Advocacy webinar via Zoom live on Tuesday 26 July 12:30 pm-2:30 pm hosted by our friendly Advocacy team. The webinar will be centred around Housing in England for Adults with M.E. and will give an overview of some common housing-related queries we…