October 22, 2021 Statement from Forward-ME: On Monday, Forward-ME and member charities attended a round table to review the new ‘NICE guideline on ME/CFS’ with representatives from NICE and clinical… Read more >>
ANZMES asks experts for their recommendations on whether people with ME/CFS (pwME/CFS) should get the COVID-19 vaccine or not. Dr. Ros Vallings, Howick Health & Medical Centre: COVID-19 can be a severe and debilitating disease which... This post first appeared on ANZMES. Read More
We have received many queries from our membership about COVID-19 Pfizer vaccination effects for people with ME/CFS in New Zealand. To answer these questions confidently and comprehensively we decided to create a self-report survey which asks you about your experience with the vaccine. Whether you’ve experienced mild, moderate, severe, or…
One of the primary objectives of ANZMES (Associated New Zealand Myalgic Encephalomyelitis Society) is to further the cause of ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) through the promotion and funding of research into the disease. The global COVID-19 (SARS-CoV-2) pandemic has changed the way... This post first appeared on ANZMES. Read…
NICE announces next steps for publication of its guideline on ME/CFS NICE has today (20 October 2021) announced the next steps for publication of its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). NICE will publish the guideline following a meeting of its Guidance…
Your advocacy efforts are creating historic opportunities for federal funding of research and ME/CFS education. Two particular pieces of proposed legislation have great potential and I wanted to share my thoughts on each of them Solve M.E. is proud to support The COVID-19 and Pandemic Response Centers of Excellence Act…
Be sure to attend the telebriefing by the Trans-NIH ME/CFS Working Group this Friday (10/22) at 3PM ET. The National Institutes of Health (NIH) has many questions to answer about its lack of tangible progress or strategic acceleration of medical research for people with ME. Read Our Questions for NIH…
After NICE's roundtable, Janet Sylvester tells us: “I felt this was a positive meeting. There were large areas of agreement from all attendees, including all acknowledging the terrible experiences people with ME have had to endure. Together, the representatives from ME patient organisations were able to strongly get across the…
Who: Ron Davis’s lab at Stanford University is conducting a functional microbiome study in collaboration with Harvard University and Vassar College. They are looking for severely Ill, primarily bed-bound patients within the United States to participate. What: Participants will be asked to provide a one-time fecal swab which can be…
October 18, 2021 Update from Forward-ME on this afternoon’s roundtable event hosted by the National Institute for Health and Care Excellence (NICE) today. The event will aim to discuss key issues… This post first appeared on Action for M.E. Read more >>