Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…
Myalgic Encephalomyelitis (ME) is a debilitating and complex condition that affects millions of people across the globe. On May 12th, World ME Day is observed to raise awareness of this chronic illness, and to advocate for the millions of people who live with it. The disease where pushing harder can…
ANZMES has made this PDF version available to those who wish to download for their own use. IACFS conference 2022 combined report Download This post appeared first on ANZMES. Read More >>
ANZMES President Fiona Charlton speaks to journalist Dewi Preece about the impact of ME/CFS in her life and the lives of many New Zealanders living with this debilitating illness, and why it is so important for ME/CFS to be recognised as a disability. Professor Warren Tate echos these sentiments, speaking…
The ANZMES petition to reclassify ME/CFS as a disability was read in parliament at 2pm Tuesday 20th September 2022. It is now with the select committee, and ANZMES will provide a written submission to the committee before the deadline of 7th October. Radio New Zealand provided coverage on The Panel…
– no endorsement for Lightning Process for ME The Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) supports the new position paper on the Lightning Process by the World ME Alliance and does not endorse the Lightning Process for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The Lightning Process is a programme loosely…
After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…
In the run up to World ME Day on the 12th May we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in New Zealand, Italy, the USA, Northern Ireland and the wider UK. Keep on reading to see how the power of collaboration…
The New Zealand government mandate stipulates that certain industries require vaccination in order to retain employment. Although we have advised MoH that this is not as simple for those people with ME/CFS (pwME) who are affected by this Order, we have not been able to change their decision through our…
At the request of the ME/CFS community, ANZMES has issued a survey relating to reactions experienced by the community to the COVID-19 Pfizer BioNTech vaccine. ANZMES also sought to ascertain prevalence of Long COVID and COVID-19 infection in the community. The opportunity was also utilised for respondents to express interest…