Notes from the IACFS conference 2022
ANZMES has made this PDF version available to those who wish to download for their own use. IACFS conference 2022 combined report Download This post appeared first on ANZMES. Read More >>
ANZMES President speaks to One News
ANZMES President Fiona Charlton speaks to journalist Dewi Preece about the impact of ME/CFS in her life and the lives of many New Zealanders living with this debilitating illness, and why it is so important for ME/CFS to be recognised as a disability. Professor Warren Tate echos these sentiments, speaking…
New Zealand Petition read today
The ANZMES petition to reclassify ME/CFS as a disability was read in parliament at 2pm Tuesday 20th September 2022. It is now with the select committee, and ANZMES will provide a written submission to the committee before the deadline of 7th October. Radio New Zealand provided coverage on The Panel…
ANZMES backs World ME Alliance position
– no endorsement for Lightning Process for ME The Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) supports the new position paper on the Lightning Process by the World ME Alliance and does not endorse the Lightning Process for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The Lightning Process is a programme loosely…
World ME Day 2022 roundup
After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…
What’s happening around the globe for World ME Day?
In the run up to World ME Day on the 12th May we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in New Zealand, Italy, the USA, Northern Ireland and the wider UK. Keep on reading to see how the power of collaboration…
COVID-19: to vaccinate or not to vaccinate: advice for people with ME/CFS in New Zealand
The New Zealand government mandate stipulates that certain industries require vaccination in order to retain employment. Although we have advised MoH that this is not as simple for those people with ME/CFS (pwME) who are affected by this Order, we have not been able to change their decision through our…
ANZMES Preliminary Covid-19 survey findings
At the request of the ME/CFS community, ANZMES has issued a survey relating to reactions experienced by the community to the COVID-19 Pfizer BioNTech vaccine. ANZMES also sought to ascertain prevalence of Long COVID and COVID-19 infection in the community. The opportunity was also utilised for respondents to express interest…
Experts talk COVID-19 vaccine for people with ME/CFS
ANZMES asks experts for their recommendations on whether people with ME/CFS (pwME/CFS) should get the COVID-19 vaccine or not. Dr. Ros Vallings, Howick Health & Medical Centre: COVID-19 can be a severe and debilitating disease which... This post first appeared on ANZMES. Read More
ANZMES Long COVID + vaccination survey
We have received many queries from our membership about COVID-19 Pfizer vaccination effects for people with ME/CFS in New Zealand. To answer these questions confidently and comprehensively we decided to create a self-report survey which asks you about your experience with the vaccine. Whether you’ve experienced mild, moderate, severe, or…