Member Millions Missing Belgique is a voluntary organisation that advocates primarily in the French-speaking Wallonie region of Belgium, but works closely with colleagues across the country to ensure their advocacy work speaks to the needs of all. Founded in 2021 and run by a board of three members, it also…
Member ME Support (IOM) was originally established as a self-help group in 1988. It is now a fully-fledged charity providing peer support and information to people with ME across the Isle of Man. Through in-person and online meetings they reduce the isolation many people with ME experience, and build a…
Member ME/CVS Nederland is a Dutch charity working to empower and improve the position of people with ME in the Netherlands. They work to provide information, enable peer education, advocate to government and healthcare providers, and contribute to scientific research. Their board includes people with ME and carers, and they…
Member Millions Missing Canada is a Canadian advocacy organisation focused on research and treatment. Over the past few years, they have led multiple participatory campaigns to reach government and health care officials, raising awareness of the lives of people with ME in Canada and the urgent need for increased research…
Member The European ME Coalition (EMEC) is was founded in 2018 by a group of patients with a strong desire to improve the lives of people with ME in Europe and further afield. Through an EU wide petition they have advanced understanding of ME within the European Parliament, leading to…
Member Hope 4 ME & Fibromyalgia Northern Ireland is a registered charity run by patients and volunteers. Founded in 2011, they have grown from strength to strength, achieving charitable status in 2014, and honoured with receiving the Queen’s Award for Voluntary Services in 2020; becoming a foremost charitable organisation working…
Member The CFS/ME Associazione Italiana is a small organisation working to ensure people with ME in Italy have access to information about their disease from across the world. The organisation focuses on raising awareness, translating information and resources into Italian, and providing people with ME with information about their rights…
Member 12ME is a Belgian non-profit association that wants to draw attention to the seriousness of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) with a positive story. In doing so, they focus primarily on the awareness campaigns surrounding the International ME Day on May 12. They also focus efforts on…
Founding Member The Solve ME/CFS Initiative (Solve M.E.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid and other post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies,…
Founding Member Our mission is to promote awareness and recognition of myalgic encephalomyelitis (a disease also known as chronic fatigue syndrome), to help those affected and to help promote research. AQEM is a group of volunteers united around a common project, through which each of our personal victories is added…