As part of our efforts with the Solve Long Covid Initiative, we partnered with the Global Interdependence Center on a year-long webinar and conference series exploring the pandemic’s long-term healthcare... The post Signature Event Summary — Long Covid: Research, Policy and Economic Impact appeared first on Solve ME/CFS Initiative. Read…
Since 2015, the 1-2.5 million Americans with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been effectively nonexistent, at least as far as US disease tracking systems are concerned. Americans don’t experience... The post Tracking of ME/CFS Cases in the Revised US ICD-10-CM appeared first on Solve ME/CFS Initiative. Read More
Since 2015, the 1-2.5 million Americans with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been effectively nonexistent, at least as far as US disease tracking systems are concerned. Americans don’t experience any morbidity (suffering, impairment) from ME/CFS. They can’t die with ME/CFS. Nobody develops ME/CFS following an acute COVID-19 infection –…
Last night Action for M.E. and poet Alec Finlay launched Descriptions at the Scottish Poetry Library. Scottish actor Mark Bonnar was the narrator of the audio version of the piece. Audio segments were played throughout the event. The event was held to illuminate the impact ME has on people’s lives…
People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited recommendations for Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET). The invited speaker at May 13th’s CDC Stakeholder Engagement & Communication (SEC) Call presented this slide on ME/CFS management. Failing…
Il s’est écoulé une semaine depuis l’annonce de 15 cliniques dédiées à la COVID longue et à la maladie de Lyme, faite par le ministère de la Santé et des Services sociaux. Dès la sortie du communiqué de presse, le 19 mai 2022, l’AQEM s’est empressée de rédiger une lettre…
C'est aujourd'hui, jeudi 19 mai 2022, que nous attendions avec impatience l'annonce officielle du projet de cliniques pour les maladies complexes chroniques. Que ne fut pas notre déception... Today, Thursday May 19, 2022, we were eagerly awaiting the official announcement of the clinics project for chronic complex diseases. What was…
After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…
Today, AIM ImmunoTech, an immuno-pharma company focused on the research and development of therapeutics to treat multiple types of cancers, immune disorders, and viral diseases, including COVID-19, provided an update... The post AIM ImmunoTech Announces Update on Ampligen Long Covid Development Program appeared first on Solve ME/CFS Initiative. Read More
We’ve got some very exciting news this week! Clinicians working at the Long COVID clinic at Mayo Clinic’s campus in Rochester, Minnesota met with #MEAction to discuss treatment, research and improved community engagement for people with ME! They reached out to us because they were interested in engaging with a…