Facets of ME: Loneliness

Welcome to April’s #FacetsOfME where we will focus on loneliness and how this illness affects our need for connection and relationships. Loneliness can be difficult to discuss as contemplating our own loneliness and need for connection can make us feel very vulnerable. Loneliness is certainly not unique to ME but…

Continue ReadingFacets of ME: Loneliness

Take part in our campaign film: What can the world #LearnFromME?

This May 12th, the World ME Alliance is launching the first World ME Day, and we’re asking “what can the world #LearnFromME?” We know that for far too long stigma has impacted the care people with ME receive, and has led to a global lack of funding for research into…

Continue ReadingTake part in our campaign film: What can the world #LearnFromME?

Action for M.E. – What should the world #LearnFromME?

ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact of this disease cannot be overstated. In the United Kingdom we have launched Breakthrough-ME: our plan…

Continue ReadingAction for M.E. – What should the world #LearnFromME?

ME services in Wales can learn from Long COVID Adferiad programme says Health Minister

Welsh Government wants Long COVID community model to also treat and support ME, CFS and MS On 31st March 2022 the Health Minister Eluned Morgan announced further funding for the Adferiad programme for Long COVID recovery: “today I am announcing a further £5 million of Adferiad programme funding to be…

Continue ReadingME services in Wales can learn from Long COVID Adferiad programme says Health Minister

The Virtual Choir is Back — Submissions now Open!

We are excited to announce that submissions are now open to join our next virtual choir! We have so enjoyed sharing your lovely voices with the world, so we had to bring it back for this year’s #MillionsMissing MAY. This year, the song we will be singing is True Colors…

Continue ReadingThe Virtual Choir is Back — Submissions now Open!

Hope 4 ME & Fibro Northern Ireland joins the World ME Alliance

As we extend our reach across the globe, we are pleased to have one of the foremost ME organisation in Northern Ireland joining us. Hope 4 ME & Fibro Northern Ireland have an impressive track record in their country over the past decade, and we look forward to seeing how…

Continue ReadingHope 4 ME & Fibro Northern Ireland joins the World ME Alliance