Sometimes being in a small place can enable a level of advocacy and engagement in political landscapes that is harder in large countries. This is absolutely the case for the Isle of Man, where the charity ME Support (IOM) has made major strides in improving the support available for people…
Member ME Support (IOM) was originally established as a self-help group in 1988. It is now a fully-fledged charity providing peer support and information to people with ME across the Isle of Man. Through in-person and online meetings they reduce the isolation many people with ME experience, and build a…
Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues. We provided feedback on…
What is a suitable model for social prescribing in Wales? The Welsh Government want to develop a national framework for social prescribing and is asking Welsh residents to comment. What is social prescribing? Connecting people to community based support The Welsh Government wants to make sure you get…
Welcome to August’s Facets of ME! If you are unfamiliar, #FacetsOfME is a new #MEAction feature this year where we take time to explore one facet or aspect of myalgic encephalomyelitis (ME/CFS). Sometimes it is a symptom and sometimes it is a unique aspect many of us face living with…
IACFS/ME’s 15th Medical/ Scientific Conference 27-30 July 2022 If you missed out on this large conference organised by the The International Association for CFS/ME (IACFS/ME) you can now watch the video recordings of the lectures or read some of the many written reports... News | WAMES (Working for ME…
This month, ME/CVS Stichting Nederland joined the World ME Alliance as a member. This Dutch organisation has been advocating for people with ME since 1987, and has a variety of focuses as they work to empower and improve the position of people with ME in the Netherlands. Their core focuses…
Member ME/CVS Nederland is a Dutch charity working to empower and improve the position of people with ME in the Netherlands. They work to provide information, enable peer education, advocate to government and healthcare providers, and contribute to scientific research. Their board includes people with ME and carers, and they…
In April, President Biden issued a Presidential Memorandum directing the Secretary of Health and Human Services (HHS) to coordinate a new effort across the federal government to develop and issue... The post Solve M.E. Advises and Reacts to Administration Reports on Long Covid appeared first on Solve ME/CFS Initiative. Read…
The electronic version of our flagship research and advocacy journal, The Chronicle, has arrived! It includes a celebration of our Long Haul Voices: Living with Long Covid and ME/CFS video... The post The Summer 2022 Edition of The Chronicle is Available Online Now! appeared first on Solve ME/CFS Initiative. Read…