On Wednesday 12th October Dr Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear the devastation that Long Covid is causing around the world, and sets out five key elements of a plan to drive change. It is vital…
ME/CFS Genetics Research Symposium 2022 Action for ME and the University of Edinburgh Human Genetics Unit joined forces to run an ME Genetics Research Symposium on 14 September 2022 in Edinburgh ahead of the launch of the Decode ME study. The symposium brought together researchers interested in ME, people with…
Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records... The post New Diagnostic Codes for ME/CFS in the US ICD-10-CM appeared first on #MEAction Network. Read More >>
On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made…
We are hosting a Communicating with Health Professionals and Self-Advocacy Workshop for adults with M.E. in Scotland on Friday 21st of October, 2pm. Join Action for M.E.’s trained… This post appeared first on Action for M.E. Read more >>
Solve M.E. VP of Advocacy Emily Taylor at #MillionsMissing in Washington, D.C. Solve M.E. Vice President of Advocacy and Engagement Emily Taylor recently attended the #MillionsMissing protest in Washington D.C... The post Long Covid and ME/CFS Communities Gather at Capitol Protest appeared first on Solve ME/CFS Initiative. Read More >>
People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice.…
Welsh Government Charter for unpaid Carers This Charter for Unpaid Carers sets out the legal rights of unpaid carers in Wales under the Social Services and Well-being (Wales) Act 2014. These rights are the same for all unpaid carers, whether they are an adult, a young person or a child.…
Sometimes being in a small place can enable a level of advocacy and engagement in political landscapes that is harder in large countries. This is absolutely the case for the Isle of Man, where the charity ME Support (IOM) has made major strides in improving the support available for people…
Member ME Support (IOM) was originally established as a self-help group in 1988. It is now a fully-fledged charity providing peer support and information to people with ME across the Isle of Man. Through in-person and online meetings they reduce the isolation many people with ME experience, and build a…