After taking #MEAction’s photography workshop with photographer Lucia Doynel for #MillionsMissing, Terra Dumont produced these stunning photos as a glimpse into her life as someone living with ME/CFS. Terra spread this experience over 7 days, focusing on a different theme each day. See her wonderful work and accompanying commentary below.…
Action for M.E. is delighted to announce a second ground-breaking PhD, this time in conjunction with the University of Oxford.This comes shortly after announcing our jointly funded collaborative initiative with King’s College London (KCL)Our second PhD has been part-funded by Action for M.E., with the other 50% raised through crowdfunding,…
Action for M.E. and ME Research UK are delighted to announce the launch of a new ground-breaking PhD-level research project in conjunction with King’s College London.This collaborative initiative has been jointly funded between ME Research UK and Action for M.E. and will be hosted at King’s College London. The new…
As part of our efforts with the Solve Long Covid Initiative, we partnered with the Global Interdependence Center on a year-long webinar and conference series exploring the pandemic’s long-term healthcare... The post Signature Event Summary — Long Covid: Research, Policy and Economic Impact appeared first on Solve ME/CFS Initiative. Read…
Since 2015, the 1-2.5 million Americans with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been effectively nonexistent, at least as far as US disease tracking systems are concerned. Americans don’t experience... The post Tracking of ME/CFS Cases in the Revised US ICD-10-CM appeared first on Solve ME/CFS Initiative. Read More
Since 2015, the 1-2.5 million Americans with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) have been effectively nonexistent, at least as far as US disease tracking systems are concerned. Americans don’t experience any morbidity (suffering, impairment) from ME/CFS. They can’t die with ME/CFS. Nobody develops ME/CFS following an acute COVID-19 infection –…
Last night Action for M.E. and poet Alec Finlay launched Descriptions at the Scottish Poetry Library. Scottish actor Mark Bonnar was the narrator of the audio version of the piece. Audio segments were played throughout the event. The event was held to illuminate the impact ME has on people’s lives…
People with ME deserve accurate & clear ME/CFS education from the Centers for Disease Control, not recycling of discredited recommendations for Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET). The invited speaker at May 13th’s CDC Stakeholder Engagement & Communication (SEC) Call presented this slide on ME/CFS management. Failing…
Il s’est écoulé une semaine depuis l’annonce de 15 cliniques dédiées à la COVID longue et à la maladie de Lyme, faite par le ministère de la Santé et des Services sociaux. Dès la sortie du communiqué de presse, le 19 mai 2022, l’AQEM s’est empressée de rédiger une lettre…
C'est aujourd'hui, jeudi 19 mai 2022, que nous attendions avec impatience l'annonce officielle du projet de cliniques pour les maladies complexes chroniques. Que ne fut pas notre déception... Today, Thursday May 19, 2022, we were eagerly awaiting the official announcement of the clinics project for chronic complex diseases. What was…