Notre porte-parole, Charli Arcouette, participera à un panel de discussion dans le cadre d'une conférence donnée par les Instituts de recherches cliniques de Montréal (IRCM) sur les maladies mal comprises. Elle sera aux côtés de la Dre Émilia Falcone, du Dr Amir Khadir et de Jérémie Meier-Sénéchal (AQML)... Our spokesperson,…
Advocacy Month is an opportunity to share the policy solutions vital to address the growing number of individuals suffering from ME/CFS and Long Covid. ME/CFS devastated the lives of an... This post appeared first on Solve ME/CFS Initiative Read More
Do you have severe M.E. or care for someone who does? The latest edition of Severe ME/CFS: A Guide to Living is now available. Published in 2010, this invaluable book was written… This post appeared first on Action for M.E. Read more >>
On May 12th 2022, WAMES is joining with other groups around the world as the World ME Alliance to launch the first World ME Day, and we’re asking “what can the world #LearnFromME?” The world must listen to people with ME in order to #LearnFromME. Help us make a campaign…
We are excited to announce that the European ME Coalition (EMEC) is joining our Alliance. This effective organisation has wielded the European Union’s petitions system to build awareness of ME in this important international setting. Founded in 2018 by a group of patients and carers, they have engaged thousands as…
Member The European ME Coalition (EMEC) is was founded in 2018 by a group of patients with a strong desire to improve the lives of people with ME in Europe and further afield. Through an EU wide petition they have advanced understanding of ME within the European Parliament, leading to…
As part of the World ME Alliance we want to use World ME Day to reach out to health professionals on a personal basis, to help them build an understanding of ME, so we can take another step towards a world that understands ME. WAMES is proud to be a…
L’AQEM est fière d’avoir collaboré à un article exposant le lien entre l’encéphalomyélite myalgique et la COVID longue durée, paru dans le journal Montreal Gazette le 3 avril 2022... AQEM is proud to have collaborated on an article exposing the link between myalgic encephalomyelitis and long-term COVID, published in the Montreal…
This week, Solve M.E. invited members of the press to a special event announcing the release of our new whitepaper, Long Covid Impact on Adult Americans: Early Indicators Estimating Prevalence and Cost. "We co-authored this whitepaper to fill a void; to provide a preliminary analysis of a looming public health…
ME/CFS ON THE ITALIAN TV SCREEN: A VIRTUOUS MODEL by Giada Da Ros Through sundry television spaces (news, fiction, talk shows), the ME/CFS community challenged existing political, medical, and philosophical approaches to the illness (and to maladies in general). The community sought to re-appropriate the discourse, fight against stigma and…