Qu’est-ce qu’un patient partenaire? Le patient partenaire est une personne dont le vécu et les savoirs avec la maladie sont reconnus par son équipe médicale, dont il fait partie intégrante. Ses compétences d’autosoins sont ainsi développées en partenariat avec l’équipe traitante pour favoriser l’autonomie et la prise de décisions éclairées…
Welcome to our second Facets of ME! This is an educational feature in which we choose one aspect of ME to dive into and explore more in-depth once a month. Our goal is to keep it understandable while still providing a great overview and links to even more detailed information. …
By Emily Taylor, Vice President of Advocacy and Community Engagement, Solve M.E. This essay was originally published as a blog for Cumberland Advisors Market Commentary “I just got a virus... This post appeared first on Solve ME/CFS Initiative. Read More
“THAT’S WHY THEY DON’T BELIEVE YOU, YOU DON’T LOOK SICK!”: FICTIONAL REPRESENTATIONS OF ME/CFS by Giada Da Ros Sociologists emphasize the importance of social and cultural representation of social and cultural representation of chronic and emerging disease, both for individual and collective behavior. “(T)he fact that people are able to…
The following speech was delivered by Solve M.E. Board Member and person with Long Covid, Cynthia Adinig, during a Covid-19 memorial event hosted by Rami’s Heart Memorial and COVID-19 Hope... This post appeared first on Solve ME/CFS Initiative. Read More
As our team at Solve M.E. continues to make breakthroughs possible in research into ME/CFS, Long Covid, and other post-infection diseases, we also stand firm in our commitment to ensuring... This post appeared first on Solve ME/CFS Initiative. Read More
Neuro Support Groups – #LlaisNiwro Join these Wales Neurological Alliance zoom groups during March to meet others living with and supporting neurological conditions. The group meeting times with links to the Facebook groups are as follows... News | WAMES (Working for ME in Wales) | Welsh Association of ME &…
We are pleased to announce that 12ME, a Belgian organisation that focuses on raising awareness of ME around May 12th and raising funds for scientific research, has joined the World ME Alliance. At the World ME Alliance we are excited to be expanding our reach, especially in the run up…
Member 12ME is a Belgian non-profit association that wants to draw attention to the seriousness of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) with a positive story. In doing so, they focus primarily on the awareness campaigns surrounding the International ME Day on May 12. They also focus efforts on…
Funded by BBC Children in Need, our Breaking Isolation project - which began in 2020 - brings together a steering group to design and deliver a series of isolation-busting workshops… This post appeared first on Action for M.E. Read more >>