Petition: Fund research into any relationship between microclots & long Covid & ME

Petition: Fund research into any relationship between microclots & long Covid & ME A private petition to the UK Government highlights apparent similarities between long COVID and ME/CFS, and  requests research, not just support, into diagnosis, treatment and protocols for both conditions... News | WAMES (Working for ME in Wales)…

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NIH Long COVID research lacks clear plan to identify and track ME/CFS

#MEAction has written to the National Institutes of Health (NIH) expressing our deep concern that the RECOVER Initiative research agenda lacks a clear plan for how to accurately identify or consistently track the onset of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) cases among patients with Long COVID. This is of particular…

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The Last Two Years Changed the World…

What a year 2021 was! People with ME have always faced formidable challenges: every day combatting stigma, lack of understanding from clinicians, NIH’s and CDC’s low budgetary commitments, and a world of challenges navigating disability on top of symptoms.  It’s no exaggeration to say that 2020 and 2021 changed the world –…

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Llais Niwro/Neuro Voices Project – join a support group

Neuro Voices Wales – Support Groups The Wales Neurological Alliance invites anyone with a neurological condition, including ME & FM, to attend one of the new neuro support groups... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More

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After Vaccination, Health of People with ME/CFS More Likely to Worsen Compared to Controls

In survey, 19% of people with ME/CFS said health worsened after vaccination compared to 4% reported by controls. A recent survey conducted by our You + ME Registry found that the health... This post first appeared on Solve M.E. Read More

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ME/CFS research priorities – take part in PSP final selection workshops

ME/Research priority workshops The ME/CFS Priority Setting Partnership (PSP) is holding 3 final workshops to decide the top 10 ME/CFS research priorities. Apply to take part by January 11 2022. When and where? The workshops will take place on Zoom: Saturday 5th March 1.00pm – 2.30pmThursday 10th March 5.30pm -7.00pmFriday…

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After Vaccination, Health of People with Long Covid More Likely to Improve or Worsen Compared to Controls

In survey, 30% of people with Long Covid said health improved after vaccination and 28% said health worsened, compared to 4% and 7%, respectively, reported by controls. With an onslaught from the Omicron variant looming,... This post appeared first on Solve ME/CFS Initiative. Read More

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