On November 12th, just a few days after our launch of the Dear Doctor Campaign, @NICEGetInvolved retweeted our campaign and shared their thanks in our work to educate the medical establishment about the new guideline. This is cause for celebration! This is the start of a real change that has…
Over 1,700 people have now voted for their top ten ME/CFS research priorities in the UK. With the deadline fast approaching this is your last chance to join them and vote. Deadline Monday 13th December 5pm Vote now This process gives greater voice to people affected by ME/CFS to decide…
December 09, 2021 The M.E./CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future M.E./CFS research. Over 1,700 people have now voted for their… This post first appeared on Action for M.E. Read more >>
In survey, 19% of people with ME/CFS said health worsened after vaccination compared to 4% reported by controls. A recent survey conducted by our You + ME Registry found that the health... This post appeared first on Solve ME/CFS Initiative. Read More
In the spirit of giving and giving back this holiday season, we’re excited to launch our #MEAction 2022 Board of Directors Recruitment Campaign! If you are curious about Board Service or want to use your skills to help a growing nonprofit or know someone who would be a great Board…
Announcement: AMMES has recently added an informational page about COVID-19 and ME/CFS. The page includes physicians’ recommendations regarding the COVID … News and Research – American ME and CFS Society Read More
On November 17, 2021, the AQEM scientific committee was able to meet some of the representatives of the working committee for the development of care for people with long-term COVID at the National Institute of Excellence in Health and Social Services (INESSS ). During the meeting, we told them of…
The amendments to the text of the Budget of the Generalitat de Catalunya have been published today. As you may know, as we did in the Congress of Deputies, we had addressed all the parliamentary groups in the Parliament of Catalonia, in order to request that there be two budget…
Darren Randon, co-founder of Well Versed Ink, is seeking new members for an online group for UK-based Black and Black-mixed adults living with diagnosed or suspected ME or Long-Covid. Formal diagnosis is not required. The group meets every other Sunday from 1-2pm. It provides a safe space to share experiences…
You shop. Amazon gives, with a smile. Choose WAMES! AmazonSmile is the same Amazon you know. Same products, same prices, same service. Shop at smile.amazon.co.uk and they will donate to your favourite charitable organisation, at no cost to you. Go to... News | WAMES (Working for ME in Wales) | Welsh Association…