Second year of Solve/UCLA partnership September 2021–Solve M.E. is again partnering with the University of California, Los Angeles (UCLA) Iris Cantor Women’s Health Center to fund ME/CFS research through their Annual Health Pilot Program. This round of funding follows last year’s, which supported a clinical study assessing the effects of repetitive transcranial magnetic…
NICE ME/CFS guideline publication delay drags on… Another delay in the revision process to the ME/CFS guideline was announced on 10th September: Updated: 10th September, to change the month of the meeting from September to October. A NICE spokesperson said: “In order for the meeting to be as effective as possible it…
September 17, 2021 On 16 September 2021, the Action for M.E. board approved a decision to merge with The ME Trust following a process of due diligence started in June, and after consulting with key stakeholders… This post first appeared on Action for M.E. Read more >>
September 16, 2021 Action for M.E. is among more than 100 UK and international charities, organisations and support groups, alongside 150 scientific and clinical experts, who have co-signed a letter from… This post first appeared on Action for M.E. Read more >>
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are asking that you sign this petition in support…
In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and…
September 09, 2021 Thank you so much to those that have shared the views, questions and concerns about the potential merger between Action for M.E. and The ME Trust. There is still time to let us know… Read more >>
September 11, 2021 Last night, our Chief Executive Sonya Chowdhury and our Medical Adviser Dr David Strain appeared on Kait Borsay’s Times Radio Show to discuss M.E. and Long Covid. A recording of the… Read more >>
What a Year! We grew to nearly 5,000 members and are on track to reach 10,000 by mid-2022, creating a more and more robust resource for researchers. We gathered more than 2.4 million data points, more than doubling the number in four months. We incorporated Long Covid data to enhance our understanding…
The ME community responds to NICE ‘Roundtable’ announcement NICE made an announcement about ‘next steps’ following the ‘pause’ in publication– a roundtable discussion between stakeholders in September. WAMES responded by writing to NICE expressing our commitment to the publication of the ME/CFS guideline, our willingness to join the Roundtable &…