As we approach World ME Day on May 12th, the World ME Alliance is excited to announce the launch of six new graphics that explore different aspects of post-exertional malaise (PEM). These graphics are available for download and use by anyone, with the aim of raising awareness about the impact…
A collection of works by artists with severe ME. #MEAction is excited to announce our Severe ME Artist Project 2022— Gallery! The Severe ME Artist Project 2022 features work from those within the severe ME community and is in recognition of Severe ME Day on August 8th. We had a…
Caroline Kingdon, RN, MSc, is a research nurse for CureME, an organization at the forefront of participatory epidemiological, clinical and laboratory research into ME/CFS in the UK. She is also... The post CureME’s Caroline Kingdon on Representing People with Severe ME in Research appeared first on Solve ME/CFS Initiative. Read…
Each year on August 8, Severe M.E. Day, we reflect on the tremendous toll this devastating disease takes on individuals suffering from severe ME/CFS symptoms and remember the lives of... The post Join Us This August 8th to Honor Individuals with Severe ME/CFS appeared first on Solve ME/CFS Initiative. Read…
Severe ME Day takes place every year on August 8th. It is considered a day for remembrance of those who suffer from and have died from severe myalgic encephalomyelitis (ME), as well as a chance to educate the public about severe ME and advocate for better treatment and research. About…
Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by Helen Baxter Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant patients who are able to attend clinics. It is estimated…
#MEAction is once again excited to announce our Severe ME Artists Project 2022 that will feature work from those within the severe ME community and will be in recognition of Severe ME Day on August 8th! This project will be an opportunity for those with severe ME to showcase their…
Do you have severe M.E. or care for someone who does? The latest edition of Severe ME/CFS: A Guide to Living is now available. Published in 2010, this invaluable book was written… This post appeared first on Action for M.E. Read more >>