In recognition of World ME Day on May 12th 2024, our global community comes together to raise awareness about the pressing issues surrounding Myalgic Encephalomyelitis (ME). This year marks the 55th anniversary since the World Health Organization (WHO) officially acknowledged ME, highlighting the urgency of addressing this global health crisis. …
In a move that underscores their commitment to championing the cause of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Long COVID on an international scale, Emerge Australia has joined the World ME Alliance. Emerge Australia's impressive work has earned them recognition and trust as the leading national patient organisation for ME/CFS…
Date: 3rd-4th April 2024 Location: FLAD Luso American Development Foundation, Lisbon This event, the first in Portugal, will gath- er leading scientists, clinicians, and inter- national experts to share and discuss the latest biomedical evidence and findings on Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) and the nexus between Long…
Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…
We are excited to welcome MYOS (Associação Nacional Contra a Fibromialgia e Síndrome de Fadiga Crónica) as the newest member of the World ME Alliance and the first organisation from Portugal to join our global effort. Established in 2003, MYOS has been a driving force in supporting individuals with Myalgic…
Leaders in the ME community from across the globe joined in writing a rapid response to the July 2023 article titled "Anomalies in the review process and interpretation of the evidence in the NICE guideline for chronic fatigue syndrome and myalgic encephalomyelitis." The World ME Alliance is deeply disappointed that…
August 8th marks an important day for the global ME (Myalgic Encephalomyelitis) community as we come together to observe Severe ME Day. This year, the focus is on #EndMalnutritionInME, shedding light on the often overlooked and challenging aspect of accessing appropriate dietary support for individuals battling severe ME. Severe ME…
From 2022 to 2023 the World ME Alliance grew from 13 member organisations to 21. We are pleased to share with you the World ME Alliance's Annual Report for 2022-2023. In it, we explore the aims of our Alliance and how we are working to achieve these. Through looking back…
On 11th July, a new article was published in the Journal of Neurology, Neurosurgery and Psychiatry purporting to demonstrate flaws in the NICE ME/CFS guideline review process. The World ME Alliance strongly rebuts these suggestions. Our 24 member organisations are coordinating a global response to this study to demonstrate, on…
We are delighted to announce that the World ME Alliance has expanded its new resource, "Involving people with ME and energy limiting conditions" to include German and Italian translations, alongside the original English and French versions. This comprehensive guide is designed to promote the involvement of individuals who have Myalgic…