Doctors use more negative language about ME/CFS online than other illnesses

Doctors’ attitudes to medical conditions. On an online medical forum physicians were found to discuss ME/CFS, depression and Lyme disease with more negative language than 21 other diseases. The results for ME/CFS included over 4 times more negative words than the results for depression.   Doctors’ attitudes toward specific medical…

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#MillionsMissing France: Rally in Bourges, Interview with Ms. Chantal Somm

#MillionsMissing France has been busy. This month, in tandem with Adapted Physical Activity Expert Gilles Thöni, the association addressed the French National Authority for Health (HAS) requesting, as they have since 2020, that the HAS focus of aspects of their diagnostics policy on Post-Exertional Malaise (PEM), a hallmark symptom for…

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Solve M.E. Experts Join National Media Tour to Raise Awareness of Long Covid, ME/CFS, and Post-Infection Diseases

Last week, two standout members of our community — Dr. Peter Rowe and Cynthia Adinig — participated in a satellite media tour (SMT) with 27 different TV and radio stations broadcasting to local audiences all over the United States.  To date, the interviews have aired to an audience of nearly…

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The IQWiG report on ME/CFS in Germany

On 13 October 2022, the German Institute for Quality and Efficiency in Health Care (IQWiG) published its draft report on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This report was commissioned two years ago by the German government in part because of the European resolution on ME/CFS. The final report is thought…

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Millions Missing Belgique joins the World ME Alliance

Our Alliance continues to grow, and today we are announcing Millions Missing Belgique as our newest member. This organisation was born out of the Millions Missing movement founded and run by #MEAction. Belgium is divided into three political regions, based broadly on the language spoken. Millions Missing Belgique operates primarily…

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#WAMES_800 – Donations ‘In lieu of gifts’

Give donations ‘In lieu of gifts’ – to aid our #WAMES_8oo Fundraising Journey   Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family to donate to us instead of... News | WAMES (Working…

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Read more about the article World ME Alliance calls on WHO Director General to recognise ME alongside long Covid
© WHO / Pierre Albouy

World ME Alliance calls on WHO Director General to recognise ME alongside long Covid

On Wednesday 12th October Dr Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear the devastation that Long Covid is causing around the world, and sets out five key elements of a plan to drive change. It is vital…

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ME/CFS Genetics Symposium 2022: Videos & reports

ME/CFS Genetics Research Symposium 2022 Action for ME and the University of Edinburgh Human Genetics Unit joined forces to run an ME Genetics Research Symposium on 14 September 2022 in Edinburgh ahead of the launch of the Decode ME study. The symposium brought together researchers interested in ME, people with…

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