Members of the Scottish Parliament pledge their support for #MillionsMissing

On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made…

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Long Covid and ME/CFS Communities Gather at Capitol Protest

Solve M.E. VP of Advocacy Emily Taylor at #MillionsMissing in Washington, D.C. Solve M.E. Vice President of Advocacy and Engagement Emily Taylor recently attended the #MillionsMissing protest in Washington D.C... The post Long Covid and ME/CFS Communities Gather at Capitol Protest appeared first on Solve ME/CFS Initiative. Read More >>

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Tell HHS about your experience of healthcare discrimination

People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice.…

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ME Support (IOM) joins the World ME Alliance

Sometimes being in a small place can enable a level of advocacy and engagement in political landscapes that is harder in large countries. This is absolutely the case for the Isle of Man, where the charity ME Support (IOM) has made major strides in improving the support available for people…

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How Dept. of Labor can better track disability from chronic illness

Earlier this month #MEAction collaborated with Patient-Led Research Collaborative (PLRC) to suggest changes that the U.S. Department of Labor (DOL) should make in order to better track disability due to chronic illnesses such as ME/CFS and Long COVID in its regular surveys of disability employment issues.  We provided feedback on…

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Social Prescribing – Welsh Government consultation

What is a suitable model for social prescribing in Wales?   The Welsh Government want to develop a national framework for social prescribing and is asking Welsh residents to comment.   What is social prescribing?  Connecting people to community based support The Welsh Government wants to make sure you get…

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IACFSME conference videos & reports 2022

IACFS/ME’s 15th Medical/ Scientific Conference 27-30 July 2022   If you missed out on this large conference organised by the The International Association for CFS/ME (IACFS/ME) you can now watch the video recordings of the lectures or read some of the many written reports... News | WAMES (Working for ME…

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