As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a Scottish stakeholder review, carried out externally by consultant Blake Stevenson. The report on the review was published in July and…
The MELN was set up in 2021 to bring together ME friendship and support groups across the UK. The aims of the MELN are: To create a national network of local ME groups to provide… This post appeared first on Action for M.E. Read more >>
House Holds Hearing on “Understanding and Addressing Long Covid” This week, the Select Subcommittee on the Coronavirus Crisis held a hearing on understanding and addressing Long Covid and its consequences. The panel featured perspectives from patient, public health, employment, and research experts who testified to the impacts of Long Covid,…
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to…
Bestel je eigen 12ME T-shirt. We zijn bijzonder trots om onze eigen 12ME T-shirts voor te stellen!Het shirt is koningsblauw met ons logo groot in het midden bedrukt. De maten zijn unisex en je kan ze bestellen in small, medium, large, XL en XXL-formaat. Wij vinden de maten relatief groot…
As part of #DisabilityPrideMonth, The Century Foundation’s podcast Off-Kilter has been hosting a series of conversations featuring Disability Economic Justice Collaborative* members and other leaders from the disability community. #MEAction board member Ryan Prior is a guest on the two-part Off-Kilter ADA 2022 Special that dives “into the picture for…
Cwm Taf Morgannwg UHB is “aware of the revised ME/CFS NICE guideline” WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with ME. Cwm…
We are holding an Employment and Self-Advocacy workshop for adults with M.E. in Scotland on Thursday 28th July, 2pm. Join Action for M.E.’s trained and knowledgeable staff and volunteers… This post appeared first on Action for M.E. Read more >>
*Please note you may find this content distressing* Earlier this morning Jo Mckee, mother of Ella Copley, appeared on Times Radio to discuss the treatment her daughter Ella, who has severe M.E., is receiving at Leeds General Infirmary. Miss Mckee was also featured in the Times coverage which you can…
#MEAction is excited to announce our new Volunteer Survey! We invite everyone to complete the survey. The survey link will be available on #MEAction’s website until Friday, July 29th. We encourage everyone to thoughtfully consider each question, fill out their responses, and submit the survey by the due date. The…