NICE delays Roundtable – no invite for WAMES!

NICE ME/CFS guideline publication delay drags on… Another delay in the revision process to the ME/CFS guideline was announced on 10th September: Updated: 10th September, to change the month of the meeting from September to October. A NICE spokesperson said: “In order for the meeting to be as effective as possible it…

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Sign the Petition to Fix the ICD coding of ME/CFS

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are asking that you sign this petition in support…

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Sign petition To Fix ME/CFS tracking In US!

In August, we shared with you that we and six other ME/CFS organizations had submitted a proposal to the National Center of Health Statistics (NCHS) to fix the coding of ME/CFS in the US International Classification of Diseases (ICD-10-CM). Today, we are writing with an update on that proposal and…

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NICE – ME community response to ‘Roundtable’ announcement

The ME community responds to NICE ‘Roundtable’ announcement NICE made an announcement about ‘next steps’ following the ‘pause’ in publication– a roundtable discussion between stakeholders in September. WAMES responded by writing to NICE expressing our commitment to the publication of the ME/CFS guideline, our willingness to join the Roundtable &…

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