House of Lords Q&A: NICE & ME/CFS

The House of Lords, Tuesday 12 October 2021 Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome. Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and Social Care, answered questions from members of the House of Lords…

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A Response to New Yorker Article on Long COVID

A person with ME (who wishes to remain anonymous online) sent this letter to the author of The New Yorker article, “The Struggle to Define Long COVID,” and to the magazine’s editor. #MEAction was also concerned to see The New Yorker publish such a disparaging and flawed article about the Long COVID…

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An update on the NICE roundtable from #MEAction UK

#MEAction UK will be sending a representative to the NICE roundtable discussion on the final ME/CFS guideline, and have had a pre-meeting with NICE to raise our concerns about the delay to publication... This post appeared first on #MEAction Network. Read More

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Long Covid Gains Official Recognition – Expert Reaction

Friday, 8 October 2021, 11:24 am Press Release: Long Covid now has a formal definition – setting out agreed symptoms and timeframes to help spot the common post-Covid condition. The World Health Organization’s case definition aims to help doctors across the world to assess and diagnose long Covid. The illness…

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World ME Alliance Completes Major Name Change and Rebrand

#MEAction is proud to be a founding member of the World ME Alliance, a coalition of national ME/CFS organisations, which announces today a major name change and rebrand from the International Alliance for ME. To modernise and promote its unique role, the World ME Alliance is launching a new website,…

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