Stanford study enrolling now

Who: Ron Davis’s lab at Stanford University is conducting a functional microbiome study in collaboration with Harvard University and Vassar College. They are looking for severely Ill, primarily bed-bound patients within the United States to participate. What: Participants will be asked to provide a one-time fecal swab which can be…

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House of Lords Q&A: NICE & ME/CFS

The House of Lords, Tuesday 12 October 2021 Oral questions: Government discussions with the National Institute for Health and Care Excellence about myalgic encephalomyelitis and chronic fatigue syndrome. Lord Kamall, the Parliamentary Under-Secretary of State, Department of Health and Social Care, answered questions from members of the House of Lords…

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A Response to New Yorker Article on Long COVID

A person with ME (who wishes to remain anonymous online) sent this letter to the author of The New Yorker article, “The Struggle to Define Long COVID,” and to the magazine’s editor. #MEAction was also concerned to see The New Yorker publish such a disparaging and flawed article about the Long COVID…

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An update on the NICE roundtable from #MEAction UK

#MEAction UK will be sending a representative to the NICE roundtable discussion on the final ME/CFS guideline, and have had a pre-meeting with NICE to raise our concerns about the delay to publication... This post appeared first on #MEAction Network. Read More

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