September 09, 2021 Thank you so much to those that have shared the views, questions and concerns about the potential merger between Action for M.E. and The ME Trust. There is still time to let us know… Read more >>
What a Year! We grew to nearly 5,000 members and are on track to reach 10,000 by mid-2022, creating a more and more robust resource for researchers. We gathered more than 2.4 million data points, more than doubling the number in four months. We incorporated Long Covid data to enhance our understanding…
The ME community responds to NICE ‘Roundtable’ announcement NICE made an announcement about ‘next steps’ following the ‘pause’ in publication– a roundtable discussion between stakeholders in September. WAMES responded by writing to NICE expressing our commitment to the publication of the ME/CFS guideline, our willingness to join the Roundtable &…
Good news for online shoppers at Countdown, ANZMES has set up a priority assistance code for all of our members to use... This post first appeared on ANZMES Read More
‘A life I can cope with’. An alternative model of cognitive behavioural therapy (CBT) for CFS/ME, by Catherine Clark, Sue Holttum in Health Expectations 2021 [DOI: 10.1111/h ex.13326] Research abstract:ObjectivesThis study aimed to explore the experience of cognitive behavioural therapy (CBT) aimed at better management of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME), rather…
WAMES writes to NICE re ‘Roundtable event’ On 27th August, 10 days after publication of the ME/CFS guideline was ‘paused’, NICE made another announcement. Yet again this gave the bare minimum of information – their plan to invite stakeholders to a roundtable discussion in September ‘to better understand the issues…
An audit of UK hospital doctors’ knowledge and experience of Myalgic Encephalomyelitis, by Keng Ngee Hng, Keith Geraghty and Derek FH Pheby in Medicina 2021, 57(9), 885; [doi.org/10.3390/medicina57090885] 27 August 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical Features and Diagnosis) Research abstract:Background and Objectives:There is some evidence…
Professor Chris Ponting is Chair of Medical Bioinformatics at Edinburgh University and a Principal Investigator at the MRC Human Genetics … News and Research – American ME and CFS Society Read More
Last week, the National Institute of Health and Care Excellence (NICE) announced that, following the pause to the publication of it guideline on diagnosing and managing M.E./CFS, it… This post first appeared on Action for M.E. Read more >>
NICE’s ‘next steps’ – a roundtable discussion in September NICE has finally announced what happens next – more talking – with no explanation of the rules and regulations that are governing this move or how the next revision can be more ‘evidence-based’ than the current one! Dear Stakeholder, NICE announces…