Our Alliance continues to grow, and today we are announcing Millions Missing Belgique as our newest member. This organisation was born out of the Millions Missing movement founded and run by #MEAction. Belgium is divided into three political regions, based broadly on the language spoken. Millions Missing Belgique operates primarily…
Give donations ‘In lieu of gifts’ – to aid our #WAMES_8oo Fundraising Journey Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family to donate to us instead of... News | WAMES (Working…
The ANZMES petition to reclassify ME/CFS as a disability was read in parliament at 2pm Tuesday 20th September 2022. It is now with the select committee, and ANZMES will provide a written submission to the committee before the deadline of 7th October. Radio New Zealand provided coverage on The Panel…
On Wednesday 12th October Dr Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear the devastation that Long Covid is causing around the world, and sets out five key elements of a plan to drive change. It is vital…
ME/CFS Genetics Research Symposium 2022 Action for ME and the University of Edinburgh Human Genetics Unit joined forces to run an ME Genetics Research Symposium on 14 September 2022 in Edinburgh ahead of the launch of the Decode ME study. The symposium brought together researchers interested in ME, people with…
Code change will ensure US can track diagnosed cases of ME/CFS in newly created electronic health records... The post New Diagnostic Codes for ME/CFS in the US ICD-10-CM appeared first on #MEAction Network. Read More >>
On Wednesday 28th September, #MEAction Scotland led a successful #MillionsMissing demonstration outside the Scottish Parliament – the first time it’s been held in-person for three years. While it was in some ways a smaller event than #MillionsMissing Scotland was in 2018 and 2019, what it lacked in spectacle it made…
We are hosting a Communicating with Health Professionals and Self-Advocacy Workshop for adults with M.E. in Scotland on Friday 21st of October, 2pm. Join Action for M.E.’s trained… This post appeared first on Action for M.E. Read more >>
Solve M.E. VP of Advocacy Emily Taylor at #MillionsMissing in Washington, D.C. Solve M.E. Vice President of Advocacy and Engagement Emily Taylor recently attended the #MillionsMissing protest in Washington D.C... The post Long Covid and ME/CFS Communities Gather at Capitol Protest appeared first on Solve ME/CFS Initiative. Read More >>
People with ME, Long COVID and other complex, chronic diseases have experienced all kinds of healthcare discrimination. Now there is an opportunity for you to share your story and urge our government to move forward with improved protections to secure access to healthcare that is free from discrimination or prejudice.…