Mirame Arts joins the World ME Alliance as our first member in Germany

The World ME Alliance is thrilled to announce that Mirame Arts e.V., a dedicated non-profit organisation from Germany, has joined our ranks as a member. Mirame Arts have been working with us for a while as a project partner supporting the development of plans for World ME Day 2024, and…

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Mirame Arts

Mirame Arts is dedicated to improving the lives of ME patients through creative and innovative solutions. They recognize the interconnectedness of educational opportunities, workforce participation, and social policy with ME, particularly noting the impact of COVID-19. Their approach is to uncover and use the hidden connections. They understand that problems…

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32 organizations call for future pandemic preparedness to address infection-associated chronic conditions

Future pandemic preparedness will fail millions without explicit recognition of and research into infection associate chronic conditions. On 20th September 2023, the United Nations General Assembly adopted a Political Declaration on Pandemic Prevention, Preparedness and Response. The commitments outlined in this declaration are vital for enhancing global readiness to tackle…

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Expanding Access: Guide to Involvement Now Available in German and Italian

We are delighted to announce that the World ME Alliance has expanded its new resource, "Involving people with ME and energy limiting conditions" to include German and Italian translations, alongside the original English and French versions. This comprehensive guide is designed to promote the involvement of individuals who have Myalgic…

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The IQWiG report on ME/CFS in Germany

On 13 October 2022, the German Institute for Quality and Efficiency in Health Care (IQWiG) published its draft report on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). This report was commissioned two years ago by the German government in part because of the European resolution on ME/CFS. The final report is thought…

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