There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, we have released a series of actions to help you make an impact. Are you going to take action and help the world #LearnFromME? If so,…
The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak out for themselves as other parts of society have not. But it is also one of our greatest strengths. Showing…
We are excited to announce that the European ME Coalition (EMEC) is joining our Alliance. This effective organisation has wielded the European Union’s petitions system to build awareness of ME in this important international setting. Founded in 2018 by a group of patients and carers, they have engaged thousands as…
This May 12th, the World ME Alliance is launching the first World ME Day, and we’re asking “what can the world #LearnFromME?” We know that for far too long stigma has impacted the care people with ME receive, and has led to a global lack of funding for research into…
ME is a global health crisis – up to 30 million people are living with this disease worldwide, and when we take into account the effect on families, carers and friends too, the impact of this disease cannot be overstated. But there is much to be learnt from this disease…
As we extend our reach across the globe, we are pleased to have one of the foremost ME organisation in Northern Ireland joining us. Hope 4 ME & Fibro Northern Ireland have an impressive track record in their country over the past decade, and we look forward to seeing how…
Our Alliance is growing, and we a thrilled to announce that the CFS/ME Associazione Italiana is joining our ranks. This small organisation works incredibly hard to ensure that people with ME in Italy have access to the information and resources they need to get the healthcare they deserve. The organisation…
At the World ME Alliance we have revised our Memorandum of Understanding (MoU) and are pleased to share this with you. This new MoU sets in place what we expect from our member organisations and will support us as we develop a larger grouping of organisations that can advocate together…
We are pleased to announce that 12ME, a Belgian organisation that focuses on raising awareness of ME around May 12th and raising funds for scientific research, has joined the World ME Alliance. At the World ME Alliance we are excited to be expanding our reach, especially in the run up…
The World ME Alliance, a collaborative of organisations from across the globe, is launching World ME Day on 12th May this year. This new initiative aims to bring together organisations and unify efforts to raise awareness and campaign together on Myalgic Encephalomyelitis (ME). Through collective action, we will step closer…