This month, ME/CVS Stichting Nederland joined the World ME Alliance as a member. This Dutch organisation has been advocating for people with ME since 1987, and has a variety of focuses as they work to empower and improve the position of people with ME in the Netherlands. Their core focuses…
We are proud to announce that Millions Missing Canada is joining our Alliance. This organisation was born out of the Millions Missing movement founded and run by #MEAction. It was established by four core members: three who have ME and one who cared for her severely ill daughter. As an…
Severe ME Day takes place every year on August 8th. It is considered a day for remembrance of those who suffer from and have died from severe myalgic encephalomyelitis (ME), as well as a chance to educate the public about severe ME and advocate for better treatment and research. About…
The World ME Alliance and its members have worked closely over the past few months to reach a collective position on the Lightning Process. The Lightning Process is a commercial training programme that is promoted by practitioners as a cure or treatment for ME without due evidence. Additionally, there are…
After an incredible World ME Day we wanted to share some of the amazing progress made across the globe. As individuals and organisations, our community stepped forward to fight for people with ME everywhere. We're going to do this by country, because there is just so much to cover! This…
This World ME Day we asked our community to customise poster to demonstrate what we should all #LearnFromME. The profound loss endured by people with ME comes through, alongside the joy so many in our community still find, facts and figures about ME, and nuggets of wisdom or knowledge that…
We know there isn't enough research into ME happening around the world, but there is some and we're highlighting a few projects you might be able participate in. All of our member organisations are working to increase the amount of research happening into ME, and this will continue to be…
It's almost World ME Day (12th May) and we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in Spain, Belgium, the USA, the UK and more. Keep on reading to see how the power of collaboration is spreading World ME Day across continents.…
There is only a week to go until World ME Day on the 12th of May, and as part of this year’s theme, #LearnFromME, we have released a series of actions to help you make an impact. Are you going to take action and help the world #LearnFromME? If so,…
The ME community is particularly incredible in one way – it is active and engaged. This has partly from come from necessity – people with ME have had to speak out for themselves as other parts of society have not. But it is also one of our greatest strengths. Showing…