Severe ME Day takes place every year on August 8th. It is considered a day for remembrance of those who suffer from and have died from severe myalgic encephalomyelitis (ME), as well as a chance to educate the public about severe ME and advocate for better treatment and research. About…
#MEAction is excited to share a new and much-needed resource just in time for back to school! We are so thankful to have our allies at Long Covid Families join us in developing the Pacing and Management Guide for Pediatric ME/CFS and Long COVID. Our Pacing and Management Guide has…
– no endorsement for Lightning Process for ME The Associated New Zealand Myalgic Encephalomyelitis Society (ANZMES) supports the new position paper on the Lightning Process by the World ME Alliance and does not endorse the Lightning Process for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The Lightning Process is a programme loosely…
The World ME Alliance and its members have worked closely over the past few months to reach a collective position on the Lightning Process. The Lightning Process is a commercial training programme that is promoted by practitioners as a cure or treatment for ME without due evidence. Additionally, there are…
My Neuro survey Wales report 2022 from the WNA Whilst we are cognisant that the pandemic has brought with it unprecedented demand on all health and social services, two years hence, the situation for people living with neurological conditions in Wales is now at crisis point and they feel…
Solve M.E. is pleased to announce that TaKeisha S. Walker recently joined us as chief operating officer. In this newly-created role reporting to CEO Oved Amitay, TaKeisha will lead Solve’s communications, finance, and development strategies and manage cross functional... This appeared first on Solve ME/CFS Initiative. Read More
As we announced in February, the Scottish Government has committed to implementing the new NICE guideline for diagnosis and management of ME. The first step in the process was a Scottish stakeholder review, carried out externally by consultant Blake Stevenson. The report on the review was published in July and…
The MELN was set up in 2021 to bring together ME friendship and support groups across the UK. The aims of the MELN are: To create a national network of local ME groups to provide… This post appeared first on Action for M.E. Read more >>
House Holds Hearing on “Understanding and Addressing Long Covid” This week, the Select Subcommittee on the Coronavirus Crisis held a hearing on understanding and addressing Long Covid and its consequences. The panel featured perspectives from patient, public health, employment, and research experts who testified to the impacts of Long Covid,…
The U.S. Department of Labor (DOL) has opened a national online dialogue on “Understanding and Addressing the Workplace Challenges Related to Long COVID.” The online dialogue is a text-based forum that will remain open for posting ideas and voting and commenting on those ideas until August 10th. In addition to…