New Black British support group seeks members with ME and Long Covid

Darren Randon, co-founder of Well Versed Ink, is seeking new members for an online group for UK-based Black and Black-mixed adults living with diagnosed or suspected ME or Long-Covid. Formal diagnosis is not required. The group meets every other Sunday from 1-2pm. It provides a safe space to share experiences…

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Raise funds for WAMES by shopping with an Amazon smile!

You shop. Amazon gives, with a smile.  Choose WAMES! AmazonSmile is the same Amazon you know. Same products, same prices, same service. Shop at smile.amazon.co.uk and they will donate to your favourite charitable organisation, at no cost to you. Go to... News | WAMES (Working for ME in Wales) | Welsh Association…

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Entrevista al programa “Tot es Mou” de TV3 ( 30/11/2021)

As we reported last November 25, the Congress of Deputies approved an amendment to the General State Budget. Well, TV3's "Tot es Mou" program gave him the opportunity to explain it briefly to his audience. You can see the intervention we did by... This post first appeared on Plataforma Familiars.…

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NPR Features #MEAction in Series about Long COVID

NPR featured #MEAction in an article about long COVID called, “For patients with long COVID, chronic fatigue syndrome may offer a guiding star.”  MEAction’s Director of Scientific and Medical Outreach, Jaime Seltzer, speaks about how long COVID researchers and doctors must learn from the ME/CFS community. “People with chronic complex…

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La Fibromiàlgia, la Síndrome de Fatiga Crònica i la SQM seran presents als Pressupostos Generals de l’Estat 2022

We asked all the parliamentary groups of the Congress of Deputies that in the General Budgets of the State 2022 there should be two budget items: To carry out an institutional campaign from the state aimed at the general public to seek normalization of fibromyalgia, chronic fatigue syndrome and sensitivity……

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COVID-19: to vaccinate or not to vaccinate: advice for people with ME/CFS in New Zealand

The New Zealand government mandate stipulates that certain industries require vaccination in order to retain employment. Although we have advised MoH that this is not as simple for those people with ME/CFS (pwME) who are affected by this Order, we have not been able to change their decision through our…

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