Pour en savoir plus sur le rôle d’un patient partenaire

Qu’est-ce qu’un patient partenaire? Le patient partenaire est une personne dont le vécu et les savoirs avec la maladie sont reconnus par son équipe médicale, dont il fait partie intégrante. Ses compétences d’autosoins sont ainsi développées en partenariat avec l’équipe traitante pour favoriser l’autonomie et la prise de décisions éclairées…

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“The Long Covid Bust” – A Working Caregiver’s Perspective

By Emily Taylor, Vice President of Advocacy and Community Engagement, Solve M.E. This essay was originally published as a blog for Cumberland Advisors Market Commentary “I just got a virus... This post appeared first on Solve ME/CFS Initiative. Read More

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ME/CFS On TV (Part 2)

“THAT’S WHY THEY DON’T BELIEVE YOU, YOU DON’T LOOK SICK!”: FICTIONAL REPRESENTATIONS OF ME/CFS by Giada Da Ros Sociologists emphasize the importance of social and cultural representation of social and cultural representation of chronic and emerging disease, both for individual and collective behavior. “(T)he fact that people are able to…

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Solve M.E. Board Member and Person with Long Covid Cynthia Adinig Speaks At Covid-19 Memorial Event

The following speech was delivered by Solve M.E. Board Member and person with Long Covid, Cynthia Adinig, during a Covid-19 memorial event hosted by Rami’s Heart Memorial and COVID-19 Hope... This post appeared first on Solve ME/CFS Initiative. Read More

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Welsh Neuro Support Groups in March 2022

Neuro Support Groups – #LlaisNiwro Join these Wales Neurological Alliance zoom groups during March to meet others living with and supporting neurological conditions. The group meeting times with links to the Facebook groups are as follows... News | WAMES (Working for ME in Wales) | Welsh Association of ME &…

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