CFS/ME Associazione Italiana joins the World ME Alliance

Our Alliance is growing, and we a thrilled to announce that the CFS/ME Associazione Italiana is joining our ranks. This small organisation works incredibly hard to ensure that people with ME in Italy have access to the information and resources they need to get the healthcare they deserve. The organisation…

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Women’s History Month – Women Who Have Inspired Us

In honor of Women’s History Month, #MEAction asked our community to share which woman or women have inspired them in their advocacy work. The responses are heartfelt, moving, and inspiring. We hope you enjoy reading them! "This Women's History Month, I like many others, will be thinking about the contribution…

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Québec annonce 20,5M$ sur 3 ans pour 15 cliniques de traitement de maladies complexes. Qu’en est-il de l’encéphalomyélite myalgique?

Québec annonce un plan de « redressement » en santé de 5,2 milliards pour le prochain budget, comprenant des initiatives pour la Covid longue. Nous comprenons que les membres aient des questions à ce sujet, et voulons essayer d’y répondre au meilleur de nos capacités... This post appeared first on AQEM. Read…

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Bloomberg Law exclusive reports Solve M.E.-funded data on the devastating impact of Long Covid

The need for official data from the Centers for Disease Control (CDC) is crucial to the study of Long Covid, as well as the effort to fund the Long Covid... This post appeared first on Solve ME/CFS Initiative. Read More

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Sunflower lanyards for invisible disabilities

What is the Sunflower? The Sunflower is a globally recognised symbol for non-visible disabilities, also known as hidden disabilities or invisible disabilities. People living with these often face barriers... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More

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World ME Alliance revises its Memorandum of Understanding

At the World ME Alliance we have revised our Memorandum of Understanding (MoU) and are pleased to share this with you. This new MoU sets in place what we expect from our member organisations and will support us as we develop a larger grouping of organisations that can advocate together…

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Pour en savoir plus sur le rôle d’un patient partenaire

Qu’est-ce qu’un patient partenaire? Le patient partenaire est une personne dont le vécu et les savoirs avec la maladie sont reconnus par son équipe médicale, dont il fait partie intégrante. Ses compétences d’autosoins sont ainsi développées en partenariat avec l’équipe traitante pour favoriser l’autonomie et la prise de décisions éclairées…

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