Op 24 april staat 12ME op LetsLousArt in Gent, een creatieve markt van 11u tot 17u30, waar we creaties zullen verkopen van patiënten met ME/CVS en hun naasten We zijn nog op zoek naar enkele enthousiastelingen om ons te helpen: Iemand met een auto die de spullen in… On April…
Support Research, Support Patients A recent survey from our friends at Research!America found that over 80% of Americans believe our government should fund “basic scientific research that advances the frontiers... This post appeared first on Solve ME/CFS Initiative. Read More
Were you one of the many who attended the Learn about M.E. Social Care webinar on M.E./CFS & Long Covid? If you were unable to attend, you will be pleased to know that we have shared… This post appeared first on Action for M.E. Read more >>
Our Alliance is growing, and we a thrilled to announce that the CFS/ME Associazione Italiana is joining our ranks. This small organisation works incredibly hard to ensure that people with ME in Italy have access to the information and resources they need to get the healthcare they deserve. The organisation…
In honor of Women’s History Month, #MEAction asked our community to share which woman or women have inspired them in their advocacy work. The responses are heartfelt, moving, and inspiring. We hope you enjoy reading them! "This Women's History Month, I like many others, will be thinking about the contribution…
Québec annonce un plan de « redressement » en santé de 5,2 milliards pour le prochain budget, comprenant des initiatives pour la Covid longue. Nous comprenons que les membres aient des questions à ce sujet, et voulons essayer d’y répondre au meilleur de nos capacités... This post appeared first on AQEM. Read…
The need for official data from the Centers for Disease Control (CDC) is crucial to the study of Long Covid, as well as the effort to fund the Long Covid... This post appeared first on Solve ME/CFS Initiative. Read More
WAMES Annual General Meeting WAMES will be holding our annual business meeting via Skye on Monday 11th April at 4pm. This is the opportunity for members to elect officers, oversee the finances and identify priorities for the coming year.If you would like to... News | WAMES (Working for ME in…
What is the Sunflower? The Sunflower is a globally recognised symbol for non-visible disabilities, also known as hidden disabilities or invisible disabilities. People living with these often face barriers... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More
At the World ME Alliance we have revised our Memorandum of Understanding (MoU) and are pleased to share this with you. This new MoU sets in place what we expect from our member organisations and will support us as we develop a larger grouping of organisations that can advocate together…