Solve M.E. Joins Lawmakers in Asking CDC to Make Long Covid Data Publicly Available

Dear friend, This week, Representatives Ayanna Pressley and Don Beyer authored a letter to Centers of Disease Control and Prevention (CDC) Director Dr. Rochelle Walenksy asking the CDC to make... This post appeared first on Solve ME/CFS Initiative. Read More

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NICE guideline to be implemented in Scotland

NICE news for Scotland! Throughout the development of the NICE guideline for ME/CFS, #MEAction Scotland has been in regular contact with the Scottish Government about the change needed in Scotland. Now that the guideline has been published, the government has got in touch to involve us in a development. What…

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Studying the Connection Between ME/CFS, Multiple Sclerosis and Epstein-Barr Virus

A landmark study published in Science found Epstein-Barr virus (EBV) as the leading cause of Multiple Sclerosis (MS). Given the already-established connection between EBV and ME/CFS, this study may have... This post appeared first on Solve ME/CFS Initiative. Read More

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Suivi de la rencontre avec l’INESSS : le guide controversé retiré du site pendant sa révision!

Bonne nouvelle : le guide de l’INESSS a été retiré pour mise à jour. Good news: the INESSS guide has been withdrawn for updating... This post first appeared on AQEM. Read More

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#MEAction Featured in Infection Control Today Whose Audience is Researchers & Medical Practitioners

As you know, Adriane Tillman, has been working extremely hard, alongside her team of volunteers to get featured in the press and she has tapped into a new audience with her latest press hit in Infection Control Today’s article, “Long COVID Shouldn’t Have Taken Us by Surprise”, by Frank Diamond.…

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ME/CFS on TV (Part 1)

ME/CFS IN EARLY TV DISCOURSE: QUESTIONING GOVERNMENTAL POLICIES AND CHALLENGING THE CONCEPTIONS OF DISEASE AND MEDICINE  by Giada Da Ros As patients who suffer from it well know, myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) is a life-altering, debilitating, chronic, systemic disease that frequently and dramatically limits the activities of…

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Mourning the loss of Dr. Ron Tompkins

Today #MEAction joins the community in mourning the loss of Dr. Ronald G. Tompkins, MD, ScD, who passed away this week. Ron Tompkins was a clinician, clinical researcher, and friend and ally to people with ME. He was the Sumner M. Redstone Professor of Surgery at Harvard Medical School, Founding…

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Survol de l’actualité scientifique en lien avec l’encéphalomyélite myalgique en 2021.

Il y a tellement d’informations qui circulent maintenant grâce à l’internet que ça peut être difficile de s’y retrouver. C’est pourquoi notre comité scientifique effectue la vigie des parutions tout au long de l’année, et que nous restons toujours à l’affût des nouvelles concernant l’encéphalomyélite myalgique... This post first appeared…

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Petition: Fund research into any relationship between microclots & long Covid & ME

Petition: Fund research into any relationship between microclots & long Covid & ME A private petition to the UK Government highlights apparent similarities between long COVID and ME/CFS, and  requests research, not just support, into diagnosis, treatment and protocols for both conditions... News | WAMES (Working for ME in Wales)…

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