The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline and we are delighted that they have finally listened to the ME community in several key areas. NICE delayed publication of this guideline in August after concerns were raised by a few Royal Colleges. Instead,…
NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has today published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). It is estimated that there are over 250,000 people in England and Wales with ME/CFS, with about 2.4 times as…
October 29, 2021 Action for M.E. is delighted, as are the other members of Forward-ME, to see the long-awaited guideline on diagnosing and treating M.E be published by NICE. The publication follows… This post first appeared on Action for M.E. Read more >>
Programa per a l’acte “La COVID persistent com a síndrome postvírica i la seva possible associació amb altres síndromes de sensibilització central”, que tindrà ... Punt de vista Familiars de persones afectades Read More
Dear Solve community members, As summer evolves into autumn, I write to share news about our continuing evolution and growth. In the last several months, we deepened our strategic commitment to identifying diagnostics and treatments for people with ME/CFS and Long Covid, sharpened our focus on translational research, made significant…
We are so excited to announce that next year’s Solve M.E. 2022 Advocacy Week will be bigger and better than ever — and will now be Advocacy Month! For Advocacy Week in April 2021, we had more registrations than ever before, growing the strength and virtual presence of our community…
Now that our government has narrowly avoided a shutdown, I’d love to share some insights about next year’s federal budget and how we are helping to shape it today. A key goal of Advocacy Day 2021 was to circulate Chairwoman Eshoo and Representative Lofgren’s “e-Dear Colleague” letter, requesting an additional…
El pròxim 4 de novembre podrem escoltar diverses ponències sobre les qüestions que sorgeixen al voltant dels efectes de les infeccions postvíriques. Creiem que pot ser d’interès escoltar el que els experts poden aportar. RESERVA’T LA DATA 4 de novembre de 2021 Punt de vista Familiars de persones afectades... Read…
After three years of advocacy, Solve M.E. scored a concrete legislative victory with the passage of The Clinical Treatment Act. This covers clinical trial costs for qualifying 74.8M Medicaid participants — including ME/CFS patients — and provides resources for ME/CFS clinical trials. Lowering the costs and barriers for participation in clinical…
Take the survey The ME/CFS Priority Setting Partnership (PSP) is giving you the opportunity to define your top ten priorities for future ME/CFS research. In partnership with the James Lind Alliance, the ME/CFS Priority Setting Partnership is launching their second survey today. The research questions in this survey are based…