NICE ME/CFS guidelineCautious welcome from WAMES & the ME community WAMES welcomes the publication of the 2021 NICE guideline for ME/CFS and the decision by NICE to ‘follow the science’ regarding... News | WAMES (Working for ME in Wales) | Welsh Association of ME & CFS Support Read More
After 3 years of hard work by an independent guideline committee, the new ME/CFS guideline, published by the National Institute for Health and Care Excellence (NICE), contains major improvements. Work must now take place to ensure this guideline is implemented accurately and with people with ME at the heart of…
A petition to the German Bundestag is gaining increasing numbers of signatures. But it still needs your help. Sign for ME/CFS If they can reach 50,000 signatures by the 9th November they will automatically be granted a public hearing with the German Bundestag. To sign you must complete three steps:…
The National Institute for Health and Care Excellence (NICE) has now published its ME/CFS guideline and we are delighted that they have finally listened to the ME community in several key areas. NICE delayed publication of this guideline in August after concerns were raised by a few Royal Colleges. Instead,…
NICE ME/CFS guideline outlines steps for better diagnosis and management NICE has today published its updated guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome (ME/CFS). It is estimated that there are over 250,000 people in England and Wales with ME/CFS, with about 2.4 times as…
October 29, 2021 Action for M.E. is delighted, as are the other members of Forward-ME, to see the long-awaited guideline on diagnosing and treating M.E be published by NICE. The publication follows… This post first appeared on Action for M.E. Read more >>
Programa per a l’acte “La COVID persistent com a síndrome postvírica i la seva possible associació amb altres síndromes de sensibilització central”, que tindrà ... Punt de vista Familiars de persones afectades Read More
Dear Solve community members, As summer evolves into autumn, I write to share news about our continuing evolution and growth. In the last several months, we deepened our strategic commitment to identifying diagnostics and treatments for people with ME/CFS and Long Covid, sharpened our focus on translational research, made significant…
We are so excited to announce that next year’s Solve M.E. 2022 Advocacy Week will be bigger and better than ever — and will now be Advocacy Month! For Advocacy Week in April 2021, we had more registrations than ever before, growing the strength and virtual presence of our community…
Now that our government has narrowly avoided a shutdown, I’d love to share some insights about next year’s federal budget and how we are helping to shape it today. A key goal of Advocacy Day 2021 was to circulate Chairwoman Eshoo and Representative Lofgren’s “e-Dear Colleague” letter, requesting an additional…