New Factsheet on ME: Available in Multiple Languages for World ME Day

We are excited to announce the launch of our new factsheet on myalgic encephalomyelitis (ME), with a particular focus on post-exertional malaise (PEM). Available in four languages, we hope this resource will help build a basic understanding of ME across borders. Myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome…

Continue ReadingNew Factsheet on ME: Available in Multiple Languages for World ME Day

Send a press release about World ME Day to your local news outlets

To mark World Health Day, and with just over one month to go until World ME Day, we are launching our next resource! Are you interested in helping to raise awareness for myalgic encephalomyelitis (ME), a chronic and disabling disease that affects millions of people worldwide? If so, you're invited…

Continue ReadingSend a press release about World ME Day to your local news outlets

World ME Day posters launched exploring the 2023 theme

As we approach World ME Day on May 12th, the World ME Alliance is excited to announce the launch of six new graphics that explore different aspects of post-exertional malaise (PEM). These graphics are available for download and use by anyone, with the aim of raising awareness about the impact…

Continue ReadingWorld ME Day posters launched exploring the 2023 theme

Engaging with the WHO over disability health equity

Following our letter to the World Health Organization (WHO) highlighting critical gaps in their “Global report on health equity for persons with disabilities”, we have met with officials to discuss our recommendations. This was a positive discussion on the importance of including those with energy limiting disabilities in global health…

Continue ReadingEngaging with the WHO over disability health equity

2023 World ME Day campaign announced

The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people begin to understand this disease more accurately. That’s why our tagline this year is “ME: the disease where pushing harder can make…

Continue Reading2023 World ME Day campaign announced

Highlighting critical gaps in the WHO “Global report on health equity for persons with disabilities”

On the 2nd December 2022, the World Health Organization (WHO) published an important global report on health equity for persons with disabilities. The report is based upon the principle that persons with disabilities have the right to the highest attainable standard of health as those without disabilities. It demonstrates that…

Continue ReadingHighlighting critical gaps in the WHO “Global report on health equity for persons with disabilities”

Japan ME Association joins the World ME Alliance

As we begin 2023, we are proud to announce the Japan ME Association is joining our World ME Alliance. We are hopeful that this will be a fruitful relationship, extending our global reach as we build a stronger ME community together, and supporting the Japan ME Association in its activities.…

Continue ReadingJapan ME Association joins the World ME Alliance

An Evolving Landscape: Long Covid’s Impact on ME/CFS

It’s hard to believe that we’re well into the third year of the COVID-19 pandemic, which coincidentally overlaps with my time as Solve M.E.’s President and CEO. In this time... The post An Evolving Landscape: Long Covid’s Impact on ME/CFS appeared first on Solve ME/CFS Initiative.... Read More >>

Continue ReadingAn Evolving Landscape: Long Covid’s Impact on ME/CFS

Millions Missing France joins the World ME Alliance

With great excitement, we announce our 20th member, and yet another country joining our ranks! Today Millions Missing France officially joins our Alliance, providing yet more global reach and we build a stronger ME community together. Millions Missing France was founded in 2018, and has since grown to become a…

Continue ReadingMillions Missing France joins the World ME Alliance

La luminothérapie et le changement de saison

La luminothérapie, ça mange quoi en hiver? La luminothérapie consiste à s’exposer à de la lumière artificielle projetée par une lampe (qui n’émet aucun rayon UV) un certain nombre de minutes par jour, afin de simuler les heures d’ensoleillement habituelles en été et au printemps. Rien de plus simple :…

Continue ReadingLa luminothérapie et le changement de saison