Read more about the article Solve Ramsay Grant Scientists Among Those Awarded Nearly $5 Million for Biomedical Research

Solve Ramsay Grant Scientists Among Those Awarded Nearly $5 Million for Biomedical Research

This week the Patient-Led Research Collaborative (PLRC) announced $4.8 million in biomedical research awards for Long Covid and associated conditions. ine research projects in Long Covid, ME/CFS, dysautonomia, and associated conditions will study “many investigative paths, including microclots, spinal-structural abnormalities, immunologic dysfunction, microbiome changes, mechanisms of sleep dysfunction, computational drug…

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Read more about the article Carers rights day 24 Nov 2022 – Caring costs

Carers rights day 24 Nov 2022 – Caring costs

Caring costs: Carers Rights day Caring Costs in so many ways. It could be the cost to unpaid carers’ wellbeing and ability to access health services. Sometimes it’s the financial costs associated with looking after someone – or the effects on carers’ employment options. Taking care of someone may cost…

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Read more about the article Infection-associated chronic disease experts needed at ARPA-H

Infection-associated chronic disease experts needed at ARPA-H

Congress launched ARPA-H (the Advanced Research Projects Agency for Health) this past March to focus on high-risk, high-reward research projects with the goal to solve intractable health problems. As ARPA-H is in the process of hiring its first cohort of program managers, #MEAction and a coalition of chronic disease advocacy…

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Read more about the article BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION is a Commitment to Healthcare Justice for People with ME

BOLD ACTION to me, means mobilizing our community to publicly demonstrate our deep and intense—as opposed to shallow and passive—commitment to seeing healthcare justice for people with ME. It is about bringing our issues to the forefront of public consciousness and putting strong pressure on our leaders to act. Taking…

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Read more about the article Een hart voor ME 2022

Een hart voor ME 2022

Een hart voor ME 2022 Voor het 5e jaar op rij verkoopt 12ME verse hartenwafeltjes om het wetenschappelijk onderzoek naar de ziekte myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS) een duwtje in de rug te geven. De wafeltjes worden ambachtelijk gemaakt aan de hand van een geheim familierecept. We presenteren ze in feestelijke…

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Read more about the article What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults

What Primary Care practitioners need to know about the new NICE guideline for myalgic encephalomyelitis/chronic fatigue syndrome in adults

Caroline Kingdon’s new paper on the NICE guideline for ME was co-written with #MEAction UK volunteer Adam Lowe, as well as Charles Shepherd of the ME Association and Luis Nacul of the London School of Tropical Medicine.  As members of the NICE guideline development committee, the authors wrote this paper…

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Read more about the article Nieuw ME/CVS-onderzoek in Duitsland

Nieuw ME/CVS-onderzoek in Duitsland

Nieuw ME/CVS-onderzoek in Duitsland Hoopvol nieuws voor patiënten met myalgische encefalomyelitis/chronisch vermoeidheidssyndroom (ME/CVS). In Duitsland investeert de overheid 10 miljoen in een nieuw netwerk dat medicijnen gaat testen voor ME/CVS. Dat meldt het Charité, de universiteitskliniek van Berlijn, in een persbericht. Onder leiding van professor dokter Carmen Scheibenbogen wordt een…

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Read more about the article Solve M.E. & Community Partners Denounce Misleading New York Magazine Article

Solve M.E. & Community Partners Denounce Misleading New York Magazine Article

The article published in NY Magazine on Nov 4, 2022, “Has Long COVID Always Existed? The pandemic might not have spawned a new chronic illness but rebranded an old one,” was a disappointing step back 30 years to a time when the science of post-viral conditions was young. Back then,…

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