On the 12 May, World ME Day, the former Secretary of State for Health and Social Care, Sajid Javid, announced the Government’s intention to develop a cross-Government Delivery Plan on ME/CFS for England. This intention was published in a Written Ministerial Statement laid in Parliament. Development of the plan will…
DHSC Delivery Plan on ME/CFS development strategy The Department for Health & Social Care (DHSC) in England has laid out the way they intend to develop the “cross-Government Delivery Plan on ME/CFS for England”, which their Health Secretary announced in May 2022. In a communication to stakeholders on 17th…
All are welcome to attend Action for M.E.'s 2022 Annual General Meeting (AGM) where you can meet Action for M.E. staff and Trustees and hear how we’ve worked with and supported people…... This post appeared first on Action for M.E. Read more >>
This consultation seeks feedback on suggested media advice for journalists reporting on M.E. and developing a helpful handbook of best practices for distribution to media outlets. The purpose of this consultation is to gather opinions from important stakeholders to ensure that all perspectives of the community are... This post appeared…
Ingebjørg Midsem Dahl was born in 1979 in Oslo, Norway, where she still lives. She came down with ME acutely in 1983. Ingebjørg has done written information work for major... The post Guest Blog: That Thing Called Pacing, by Ingebjørg Midsem Dahl appeared first on Solve ME/CFS Initiative. Read More…
Today (17 August), the Department for Health and Social Care has published further information about the cross-government Delivery Plan on M.E./CFS, which was announced by the Government… This post appeared first on Action for M.E. Read more >>
We are proud to announce that Millions Missing Canada is joining our Alliance. This organisation was born out of the Millions Missing movement founded and run by #MEAction. It was established by four core members: three who have ME and one who cared for her severely ill daughter. As an…
Member Millions Missing Canada is a Canadian advocacy organisation focused on research and treatment. Over the past few years, they have led multiple participatory campaigns to reach government and health care officials, raising awareness of the lives of people with ME in Canada and the urgent need for increased research…
Creatieve infomarkt te Gent (11/09/2022) Graag nodigen we jullie op zondag 11 september uit op een creatief en informatief minimarktje van 12ME. Van 11.00 tot 17.00 uur vind je ons aan de Parkresidentie van Institut Moderne te Gent. Alle spulletjes die we verkopen zijn handgemaakt en/of ontworpen door patiënten met ME/ CVS en hun…
Powys Health Board [in Wales] say they are committed to using NICE guidance. WAMES has been asking Health Boards in Wales what plans they have to implement the new NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might benefit people with…