In the run up to World ME Day on the 12th May we’re sharing more about what our member organisations are up to! Today we’re hearing from organisations in New Zealand, Italy, the USA, Northern Ireland and the wider UK. Keep on reading to see how the power of collaboration…
This week, New York Times writer Peter Coy’s piece, “Pushing ‘Long Covid’ Sufferers Too Hard Could Cause Them to Crash,” cited our recently released whitepaper, Long Covid’s impact on adult... This post appeared first on Solve ME/CFS Initiative. Read More
With energy bills rising 14 times faster than wages, households this winter are predicted to see a fall in real-wage income by nearly £1,000. British Gas further estimates that energy… This post first appeared on Action for M.E. Read more >>
#MEAction is advancing ME/CFS advocacy efforts through our ongoing engagement with U.S. federal agencies, including at the Department of Health and Human Services (HHS). We continue to fight for our government to do more to meet the needs of people with ME, and to ensure that the evolving Long COVID…
We have a very exciting opportunity to come together and watch the award-winning documentary Not Going Quietly. We also have an amazing live panel set up to discuss it with us immediately afterwards. Terri Wilder will be moderating and she shares her enthusiasm with us in this short video: We…
After an amazing year in 2021, raising over £20,000 for M.E. charities across the world, champion fundraiser Anna Redshaw is inviting you to take part in her Blue Sunday Tea Party 2022… This post appeared first on Action for M.E. Read more >>
Notre porte-parole, Charli Arcouette, participera à un panel de discussion dans le cadre d'une conférence donnée par les Instituts de recherches cliniques de Montréal (IRCM) sur les maladies mal comprises. Elle sera aux côtés de la Dre Émilia Falcone, du Dr Amir Khadir et de Jérémie Meier-Sénéchal (AQML)... Our spokesperson,…
Advocacy Month is an opportunity to share the policy solutions vital to address the growing number of individuals suffering from ME/CFS and Long Covid. ME/CFS devastated the lives of an... This post appeared first on Solve ME/CFS Initiative Read More
Do you have severe M.E. or care for someone who does? The latest edition of Severe ME/CFS: A Guide to Living is now available. Published in 2010, this invaluable book was written… This post appeared first on Action for M.E. Read more >>
On May 12th 2022, WAMES is joining with other groups around the world as the World ME Alliance to launch the first World ME Day, and we’re asking “what can the world #LearnFromME?” The world must listen to people with ME in order to #LearnFromME. Help us make a campaign…